time frame

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Nene

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Nov 12, 2007
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16
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PALS
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10/2007
Country
AUS
State
queensland
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cairns
Hi everyone I know this might be a silly question but what has been the general time frame in losing your mobility I keep looking for signs and I thinks I'm making myself extremely anxious
 

Icanmanz

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Jul 14, 2007
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947
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Texas
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Tomball
Hi jene, I may be wrong, but I'd say Als progression affects Pals differently.

Irma
 

freddiesnetty

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Nov 2, 2007
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239
Diagnosis
12/2006
Country
US
State
Tx
City
Houston
Hi Jene,
I think this disease affects everyone different, I have noticed that when my husband fell (twice) every time things progressed faster, I don't know if this is a factor or not...Other pals may have more insight.
Annette
 

kathmc

Active member
Joined
Jun 9, 2006
Messages
51
Reason
PALS
Diagnosis
02/2006
Country
US
State
ky
City
lexington
From other members posts & my own journey It seems eneryone's progression is different. A post months ago from a member in Calif. ( ladave I think ) said he had diagnosis for 7 years & he still dances. I ? if a 1st symptom was fatigue of arms & hands when applauding at concerts---it was odd. That was quite a bit b4 falling. My progression seems to vary. Hope this helps.

kathy
ky.
 

CindyM

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Learn about ALS
Country
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Basically, the disease affects everybody in similar ways but progression tends to be unique. THat's what I've heard...Cindy
 

Sammantha

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jene

Hi Jene, i can attest to what i have experienced.... My left foot has "foot drop" and my left wrist/hand does. I have had it for almost a year and only now am i experiencing problems with it... Like tripping every now and then, and not being able to stand on my tiptoes... I went to do a big strectch the other day and my left ankle gave out and twisted underneath me, ironically it did not hurt and i caught my balance.... Sometimes i wobble or start to fall on that side but catch myself. But i still use my arm and leg and i can dance somewhat and all that normal stuff!
 
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