ShiftKicker
Moderator
- Joined
- Mar 16, 2015
- Messages
- 8,345
- Reason
- DX UMND/PLS
- Diagnosis
- 06/2015
- Country
- CA
- State
- BC
- City
- Vancouver
Riggs-
While I can not say anything to your symptoms other than work with your doctor (Which you are- good! What's next with tests? Has your doctor referred you to a specialist?), I would like to address a statement you made. "...hoping some of the knowledgeable users can help b/c that's what they're here for"- The users here are knowledgeable because they are either suffering from ALS, or helping care for someone with ALS and come here to share knowledge and get support from each other for a very hard and heartbreaking situation. They are not here to help people diagnose themselves or tell people they have ALS. Please be very careful in your wording, as it comes across that you think there's a whole group of people here to help YOU specifically- with little understanding this is a group of people affected by ALS that supports each other and very kindly tries to offer advice to people searching for diagnosis as well. This group's primary objective is to help people who have already been diagnosed with Motor Neuron Disease.
I am not saying you have nothing to worry about- you have symptoms that affect you seriously- but you're telling people online to help you in a situation that a real live doctor can help you more with. Please work with your doctor. Do whatever tests they recommend. Ask your doctor what is on the list of things they are looking for and ask them what is your next step.
I wish you well
While I can not say anything to your symptoms other than work with your doctor (Which you are- good! What's next with tests? Has your doctor referred you to a specialist?), I would like to address a statement you made. "...hoping some of the knowledgeable users can help b/c that's what they're here for"- The users here are knowledgeable because they are either suffering from ALS, or helping care for someone with ALS and come here to share knowledge and get support from each other for a very hard and heartbreaking situation. They are not here to help people diagnose themselves or tell people they have ALS. Please be very careful in your wording, as it comes across that you think there's a whole group of people here to help YOU specifically- with little understanding this is a group of people affected by ALS that supports each other and very kindly tries to offer advice to people searching for diagnosis as well. This group's primary objective is to help people who have already been diagnosed with Motor Neuron Disease.
I am not saying you have nothing to worry about- you have symptoms that affect you seriously- but you're telling people online to help you in a situation that a real live doctor can help you more with. Please work with your doctor. Do whatever tests they recommend. Ask your doctor what is on the list of things they are looking for and ask them what is your next step.
I wish you well