Could use some experience based guidance.
My PALS, who is only 1 year & 2 months out from diagnosis, is beginning to have periods of difficult breathing which is making her a bit anxious. I'm wondering if it is time to call in hospice help or palliative care (?). She indicates that it is not related to mucus/saliva buildup in her lungs.
As mentioned in previous posts, she is bulbar onset in her mid 60's, is almost totally paralyzed with the exception of some weak movement in one hand, can't speak or swallow, has been tube fed for the last 4 months and neck muscles are nearing a state of complete paralysis.
My PALS, who is only 1 year & 2 months out from diagnosis, is beginning to have periods of difficult breathing which is making her a bit anxious. I'm wondering if it is time to call in hospice help or palliative care (?). She indicates that it is not related to mucus/saliva buildup in her lungs.
As mentioned in previous posts, she is bulbar onset in her mid 60's, is almost totally paralyzed with the exception of some weak movement in one hand, can't speak or swallow, has been tube fed for the last 4 months and neck muscles are nearing a state of complete paralysis.