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Lorie
Senior member
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- May 17, 2007
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- 551
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- Alabama
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- Mobile
Tim Had a Set Back
We have went to HELL and back again. Friday morning I received a call from the ICU Nurse at 12:30am. Tim started vomiting the food he had eaten thursday. He aspired food into his Lungs. He could not breath and asked to be put back on the Vent. His Pneumonia was worse than ever. He was running a 102 degree temp Friday and Saturday. This morning he had a Temporary Trach. They can not keep him on the breathing tube more than two weeks. It would start shuting his other organs down. So he agreed to do this. It will help the Pneumonia clear up. He can be suctioned out easier. And he is still on the Vent with the Trach. I was there all morning today for the Surgery. I was scared because he had been on blood thinners since he went into the Hospital (yesterday was three weeks). He was a risk of a Blood Clot and could Bleed alot. well Thank God, he did not have either. He came through it just fine. What an amazing man my brother is :-D. And he is so strong. the Doctor said within a few days, he can eat and talk with this Trach. He will not have it when he leaves the Hospital. (no time soon). He will stay in ICU for the duration of his stay. They want to keep him with one on one care. We have the most wonderful doctors and nurses. Of course I know them all pretty well now.
I talked with one of his Nurses Saturday. Next Saturday the 26th. is Tim's Birthday. We are going to do something for his BIRTHDAY. This Nurse is off that day, but she is going to come to town just for his day. Guess what it is RED. She has turned around.
If we didn't have enough going on. Friday when I left the Hospital at 6:00pm. On the way home. My left foot started hurting. I was fine before that. I pulled into our driveway, I could not put my foot down to get out of the car. I went into severe pain. My husband and daughter had to get me inside. The pain would not stop. My husband wanted me to go to the E.R. I said no. I was on crutches, all night and Saturday. I finally was able to walk to go the the hospital Saturday. It hurt like H____. But I made it. I think it was Spastic and Cramped. I am suppose to go back to the Neuro. thursday. But I am going to change it for August.
Netty- I tried to call you the other day. Who ever answered said that was not your number. I will try again soon. I hope you ad Freddie are transitioning ok.
Caroline- I LOVE the JIGGLY KITTY! Call me one morning this week. I am going to call Capt. Al soon.
Keep the Prayers and Care's going. We will make it through this. The Nurses call me Tim's Cheerleader. I am about the only one ever there. Everyday for at least three visiting hours.
Love to ALL,
Lorie
We have went to HELL and back again. Friday morning I received a call from the ICU Nurse at 12:30am. Tim started vomiting the food he had eaten thursday. He aspired food into his Lungs. He could not breath and asked to be put back on the Vent. His Pneumonia was worse than ever. He was running a 102 degree temp Friday and Saturday. This morning he had a Temporary Trach. They can not keep him on the breathing tube more than two weeks. It would start shuting his other organs down. So he agreed to do this. It will help the Pneumonia clear up. He can be suctioned out easier. And he is still on the Vent with the Trach. I was there all morning today for the Surgery. I was scared because he had been on blood thinners since he went into the Hospital (yesterday was three weeks). He was a risk of a Blood Clot and could Bleed alot. well Thank God, he did not have either. He came through it just fine. What an amazing man my brother is :-D. And he is so strong. the Doctor said within a few days, he can eat and talk with this Trach. He will not have it when he leaves the Hospital. (no time soon). He will stay in ICU for the duration of his stay. They want to keep him with one on one care. We have the most wonderful doctors and nurses. Of course I know them all pretty well now.
I talked with one of his Nurses Saturday. Next Saturday the 26th. is Tim's Birthday. We are going to do something for his BIRTHDAY. This Nurse is off that day, but she is going to come to town just for his day. Guess what it is RED. She has turned around.
If we didn't have enough going on. Friday when I left the Hospital at 6:00pm. On the way home. My left foot started hurting. I was fine before that. I pulled into our driveway, I could not put my foot down to get out of the car. I went into severe pain. My husband and daughter had to get me inside. The pain would not stop. My husband wanted me to go to the E.R. I said no. I was on crutches, all night and Saturday. I finally was able to walk to go the the hospital Saturday. It hurt like H____. But I made it. I think it was Spastic and Cramped. I am suppose to go back to the Neuro. thursday. But I am going to change it for August.
Netty- I tried to call you the other day. Who ever answered said that was not your number. I will try again soon. I hope you ad Freddie are transitioning ok.
Caroline- I LOVE the JIGGLY KITTY! Call me one morning this week. I am going to call Capt. Al soon.
Keep the Prayers and Care's going. We will make it through this. The Nurses call me Tim's Cheerleader. I am about the only one ever there. Everyday for at least three visiting hours.
Love to ALL,
Lorie
olly
Extremely helpful member
- Joined
- Jan 10, 2008
- Messages
- 2,743
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- PALS
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- 11/2007
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- uk
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- uk
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- uk
hi lorie
i am so sorry to hear tim has had a set back.
but as the doc said the trach may help to clear the pnumonia
so i suppose it needed to be done and hopefully be for the best.
give tim my love and tell him i think about him and you everyday.
i will try and call this week,about 9-10am your time.
godbless.
caroline
i am so sorry to hear tim has had a set back.
but as the doc said the trach may help to clear the pnumonia
so i suppose it needed to be done and hopefully be for the best.
give tim my love and tell him i think about him and you everyday.
i will try and call this week,about 9-10am your time.
godbless.
caroline
MtPockets
Very helpful member
- Joined
- Jun 1, 2006
- Messages
- 1,544
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- PALS
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- 05/2006
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- Ms
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- Gulfport
Lorie, I am so sorry that Tim has taken a turn for the worse. I pray that you and he both will be touched by God with a special annointing of peace.
They say there is no testimony, without a test. Boy have you got a testimony.
They say there is no testimony, without a test. Boy have you got a testimony.
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Lorie,
I can't imagine dealing with all you've been through!
Hang in there! We are all pulling for you and Tim!
I hope he has a fabulous Birthday and can look forward to going home as soon as possible!
I can't imagine dealing with all you've been through!
Hang in there! We are all pulling for you and Tim!
I hope he has a fabulous Birthday and can look forward to going home as soon as possible!
Last edited:
crystalkk
Very helpful member
- Joined
- Sep 11, 2007
- Messages
- 1,211
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- Learn about ALS
- Country
- US
- State
- pennsylvania
- City
- philadelphia
Lori,
I am so sorry Tim had a set back, He is strong and will pull through, I will keep praying for the both of you.
I hope he is able to enjoy his birthday at least a little bit, my son's birthday is also July 26th.
Please take care of yourself also.
I am so sorry Tim had a set back, He is strong and will pull through, I will keep praying for the both of you.
I hope he is able to enjoy his birthday at least a little bit, my son's birthday is also July 26th.
Please take care of yourself also.
sharonca
Distinguished member
- Joined
- Nov 27, 2007
- Messages
- 428
- Reason
- PALS
- Diagnosis
- 12/2007
- Country
- US
- State
- CA
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- Mentone
Lori - Oh My - what an ordeal! I left you a message about the Van for Stu and my home number. Just call me when you get a chance. Wish we could all be there to help you in person. Love to Tim.
Sharonca
Sharonca
trying to stay positive
Distinguished member
- Joined
- Sep 17, 2007
- Messages
- 313
- Reason
- CALS
- Diagnosis
- 08/2007
- Country
- US
- State
- Illinois
- City
- Chicago area
Lorie, I am so sorry about Tim's relapse. Any chance you can keep your neuro appt.? You need to take good care of yourself, too. You are both in my prayers as always.
Linda
Linda
Lorie
Senior member
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- May 17, 2007
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- Reason
- Loved one DX
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- Alabama
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- Mobile
I am in Trouble
Night before last. I got chewed out be Tims Nurse when I went at 8:30. Tim had started bleeding and vomiting earlier. So they had Tim relaxed an asleep. The Nurse asked me not to wake him aand explained what happened. Thank God it was not an Arterial Vein. Anyway, I started swaying and the Nurse had to catch my arm and I leaned against the wall. I almost passed out. I was so exhausted and not feeling well. First of all he asked where is the rest of my FAMILY? That I cannot do this alone. He also stated that the Case Worker made a note in Tim's file that I was the only one coming on a consistent basis. Why was the rest of the FAMILY not coming? I said I was not making anymore excuses for them. They can call and ask them why they are not coming. I have had it with them. My brother Ron comes about every 3-4 days for a few minutes. They told me I look terrible. I was also having Vertigo spells. Then last night, another Nurse stopped me when I was leaving, she said Mrs. Walley, You are going to have to look after you. I have seen it too many times, people getting sick trying to keep up all the time. I told her I knew that, but I am Tims support system. I am not going to let him down.
My FAMILy (all of them) have an OH WOE IS ME EXCUSE! I am sick to. But I put Tim above myseslf. If he did not have me, he would have no one. I will not let that Happen!
Then then last night, something else upset Tim and I both. I will post later about that. I need to get some things strait at the Hospital, today. Going in 45 minutes.
Thank God I am the person I am. I cannont believe some people in this world. (yes I can).
Linda-I re-scheduled my appt, this morning for August 17th at 9:40. At t his point, I dont even care if I go or not. I am had!
Had to Vent. Thanks Guys!
Netty -I hope you have people helping you!
Happy Birthday Crystal!:-D
Lorie
Night before last. I got chewed out be Tims Nurse when I went at 8:30. Tim had started bleeding and vomiting earlier. So they had Tim relaxed an asleep. The Nurse asked me not to wake him aand explained what happened. Thank God it was not an Arterial Vein. Anyway, I started swaying and the Nurse had to catch my arm and I leaned against the wall. I almost passed out. I was so exhausted and not feeling well. First of all he asked where is the rest of my FAMILY? That I cannot do this alone. He also stated that the Case Worker made a note in Tim's file that I was the only one coming on a consistent basis. Why was the rest of the FAMILY not coming? I said I was not making anymore excuses for them. They can call and ask them why they are not coming. I have had it with them. My brother Ron comes about every 3-4 days for a few minutes. They told me I look terrible. I was also having Vertigo spells. Then last night, another Nurse stopped me when I was leaving, she said Mrs. Walley, You are going to have to look after you. I have seen it too many times, people getting sick trying to keep up all the time. I told her I knew that, but I am Tims support system. I am not going to let him down.
My FAMILy (all of them) have an OH WOE IS ME EXCUSE! I am sick to. But I put Tim above myseslf. If he did not have me, he would have no one. I will not let that Happen!
Then then last night, something else upset Tim and I both. I will post later about that. I need to get some things strait at the Hospital, today. Going in 45 minutes.
Thank God I am the person I am. I cannont believe some people in this world. (yes I can).
Linda-I re-scheduled my appt, this morning for August 17th at 9:40. At t his point, I dont even care if I go or not. I am had!
Had to Vent. Thanks Guys!
Netty -I hope you have people helping you!
Happy Birthday Crystal!:-D
Lorie
Beebe
Distinguished member
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- May 2, 2006
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- 4/2006
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Lori important you take care of yourself
Hi Lori, I understand where you are coming from. Jack had most of his family living within a 5 mile radius. Where were they? Stop in for 10 mins. see you tomorrow,UHUH! If you need anything just call,Nice if they answered your call. It was Stephanie my other daughter Michele and myself doing all the time. Wanted to remember the old Jack! Excuses ! If you remember Stephanie developed Advanced Breast Cancer a year ago. No sleep at night ,going to work everyday and STRESS! That wasn't the end it went to her Brain, she had Radiation for 6 weeks, all clear, but since she didn't have Chemo during that time it spread to her Spinal Fluid another set back, but not for long. Stephanie is a fighter and determined person too. She goes for Chemo once a week injected in her Lumbar area and regular Chemo .. She's out there everyday doing her job.. Sorry if I went on too much but, you need rest. very important and don't miss your appointments. ALS is a tough road. Take Care and hope to hear some good news. Fondly, Beebe
Hi Lori, I understand where you are coming from. Jack had most of his family living within a 5 mile radius. Where were they? Stop in for 10 mins. see you tomorrow,UHUH! If you need anything just call,Nice if they answered your call. It was Stephanie my other daughter Michele and myself doing all the time. Wanted to remember the old Jack! Excuses ! If you remember Stephanie developed Advanced Breast Cancer a year ago. No sleep at night ,going to work everyday and STRESS! That wasn't the end it went to her Brain, she had Radiation for 6 weeks, all clear, but since she didn't have Chemo during that time it spread to her Spinal Fluid another set back, but not for long. Stephanie is a fighter and determined person too. She goes for Chemo once a week injected in her Lumbar area and regular Chemo .. She's out there everyday doing her job.. Sorry if I went on too much but, you need rest. very important and don't miss your appointments. ALS is a tough road. Take Care and hope to hear some good news. Fondly, Beebe
fiddleplayer51
Distinguished member
- Joined
- Mar 24, 2008
- Messages
- 337
- Reason
- CALS
- Diagnosis
- 03/2008
- Country
- US
- State
- VA
- City
- Harrisonburg
Lorie,
You're obviously totally exhausted. I'm so worried about you. I wish there was some easy answer.
While Tim is in the hospital he is being cared for by nurses who have come to know him and love him. This is an opportunity for you to rest for a few days and get back on your feet. Tim's being back in the hospital is essentially respite care in that it gives you a chance to take a much deserved break and get rest for yourself. You're no good to Tim if you're half dead! Tim will know you're not abandoning him. He already knows how much you love him. Please take care of yourself for a few days and get some strength.
Peace to you and Tim and all my best wishes for both of you.
Jane
You're obviously totally exhausted. I'm so worried about you. I wish there was some easy answer.
While Tim is in the hospital he is being cared for by nurses who have come to know him and love him. This is an opportunity for you to rest for a few days and get back on your feet. Tim's being back in the hospital is essentially respite care in that it gives you a chance to take a much deserved break and get rest for yourself. You're no good to Tim if you're half dead! Tim will know you're not abandoning him. He already knows how much you love him. Please take care of yourself for a few days and get some strength.
Peace to you and Tim and all my best wishes for both of you.
Jane
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