Hi everybody
My name is Laura. My mom was diagnosed with ALS 5 years ago. She made the decsion not to get a feeding tube and not to be on bipap/vent. Her pain is pretty well under contol these days. Our problem is this: My mom says there is a waxy substance in her throat which feels like it is suffocating her. The only thing that helps to take it away is hot water. At first she thought it was thrush, but no one, including the docotr or nurses, could see any evidence of thrush in her mouth or throat. Then today when I went down to visit it took me about an hour, no exaggeration to understand that she thought she had worms crawling around in throat. I know she's on a lot of medicines that could cause her to hallucinate, but she insists that this is not her imagination. Anyone have any ideas about how to help her?
Laura
My name is Laura. My mom was diagnosed with ALS 5 years ago. She made the decsion not to get a feeding tube and not to be on bipap/vent. Her pain is pretty well under contol these days. Our problem is this: My mom says there is a waxy substance in her throat which feels like it is suffocating her. The only thing that helps to take it away is hot water. At first she thought it was thrush, but no one, including the docotr or nurses, could see any evidence of thrush in her mouth or throat. Then today when I went down to visit it took me about an hour, no exaggeration to understand that she thought she had worms crawling around in throat. I know she's on a lot of medicines that could cause her to hallucinate, but she insists that this is not her imagination. Anyone have any ideas about how to help her?
Laura