CarolSue
Distinguished member
- Joined
- Dec 16, 2015
- Messages
- 123
- Reason
- PALS
- Diagnosis
- 01/2016
- Country
- US
- State
- Kansas
- City
- Middle America
Hello,
I woke up at 3:00 AM this morning and couldn't breathe. My throat was nearly closed completely. All I could do was squeak in some air. My husband heard me and jumped out of bed to try to assist me. I was in a major panic. I could only get 3 or 4 words out at a time...very squeaky sounding. I tried to tell him to give me a puff of air while I was heaving for every tiny breath. He thought I meant from the trilogy. It had been disconnected due to having our house in disarray after a hot water heater rupture. So I was waiting, gasping...I thought dying...while he detangled the trilogy from the lamp and all the other stuff on my nightstand that was across the room from me. It was taking too long to get it all set up and what I was trying to tell him anyway was to give me a puff of air.....as in CPR. It was THAT BAD. Has anyone else ever experienced this???? I wasn't coughing or choking and it lasted what seemed like an eternity but probably a minute to minute and a half...maybe longer I just really have no idea. I do know if it had gone on much longer I would have wanted to just go ahead and pass out. Then when it was over it took 3 or 4 labored breaths to get back to normal. By this time he was handing me the trilogy mask and I told him I wanted to wait. I never used the trilogy after the incident for fear of it triggering another episode.
After it was over my voice was affected as if my vocal chords were severely strained. It went away after awhile. The only other thing I noticed was thick saliva down in my throat. My husband thought it was caused from drainage. It's never happened before. I'm scared and stumped.
I did get choked on my saliva a several months ago and it cut off my wind too...but I was choking and coughing at the same time and during that episode I could breathe easier though my nose before it subsided.
My FVD was at a 66 on last clinic visit on Aug 8th. I still eat anything I want but have noticed a early signs of speech problems (feels like my vocal chords are tired after talking a lot). I'm beginning to slur slightly...although my husband says he hasn't noticed. My voice also sounds a bit weaker. Other than that I had limb onset. looking back I believe my symptoms started in January 2015.
I'm scared to go to bed tonight. Seems like I remember someone talking about throat spasms or esophageal spasms with ALS?
Please help! Any info would be greatly appreciated.
Thank you,
CarolSue
I woke up at 3:00 AM this morning and couldn't breathe. My throat was nearly closed completely. All I could do was squeak in some air. My husband heard me and jumped out of bed to try to assist me. I was in a major panic. I could only get 3 or 4 words out at a time...very squeaky sounding. I tried to tell him to give me a puff of air while I was heaving for every tiny breath. He thought I meant from the trilogy. It had been disconnected due to having our house in disarray after a hot water heater rupture. So I was waiting, gasping...I thought dying...while he detangled the trilogy from the lamp and all the other stuff on my nightstand that was across the room from me. It was taking too long to get it all set up and what I was trying to tell him anyway was to give me a puff of air.....as in CPR. It was THAT BAD. Has anyone else ever experienced this???? I wasn't coughing or choking and it lasted what seemed like an eternity but probably a minute to minute and a half...maybe longer I just really have no idea. I do know if it had gone on much longer I would have wanted to just go ahead and pass out. Then when it was over it took 3 or 4 labored breaths to get back to normal. By this time he was handing me the trilogy mask and I told him I wanted to wait. I never used the trilogy after the incident for fear of it triggering another episode.
After it was over my voice was affected as if my vocal chords were severely strained. It went away after awhile. The only other thing I noticed was thick saliva down in my throat. My husband thought it was caused from drainage. It's never happened before. I'm scared and stumped.
I did get choked on my saliva a several months ago and it cut off my wind too...but I was choking and coughing at the same time and during that episode I could breathe easier though my nose before it subsided.
My FVD was at a 66 on last clinic visit on Aug 8th. I still eat anything I want but have noticed a early signs of speech problems (feels like my vocal chords are tired after talking a lot). I'm beginning to slur slightly...although my husband says he hasn't noticed. My voice also sounds a bit weaker. Other than that I had limb onset. looking back I believe my symptoms started in January 2015.
I'm scared to go to bed tonight. Seems like I remember someone talking about throat spasms or esophageal spasms with ALS?
Please help! Any info would be greatly appreciated.
Thank you,
CarolSue