Three months of twitching and now weird hand symptoms

DrinkWater37

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Hi,

My twitching started around late December 2020/Early January 2021 in my thumb and forefinger. After that it quickly spread all over my body. It occurs both under the skin and with "clonus" where an entire finger or limb will jerk. When an entire limb jerks, I usually feel an electric shock just before it happens. It is often triggered by putting pressure on the area. For example if I am putting pressure on my elbow, the finger of that arm may start twitching.

I read the forum and was reassured that ALS does not start with twitching alone. During this period (late February) I also saw a neurologist who did a clinical exam and EMG and told me flat out "this is not ALS." So that reassured me.

However since then new symptoms have started appearing. I now have this thing where if I open my hand slowly, my pinky and ring finger don't open up fully right away. Instead they seem to "catch" and then suddenly "pop" up at the base of the fingers. Also if I close my hand slowly, these fingers at a certain angle suddenly "collapse" into my palm. These are worse during the morning. It seems like mild spasticity or trigger finger? Also my fingers feel vaguely heavy like there is a sticky webbing around them when I open and close my hand. I also seem to have mild ataxia. I can also hear my knee joints popping when I am just walking. I don't think I have arthritis as I'm only 37 and I don't do any sort of repetitive gripping at work, so I don't see where these symptoms are coming from? It seems that spasticity, finger stiffness or trigger finger can be one of the early ALS symptoms which is what worries me.
 

ShiftKicker

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Hi there-

You mention a few things- trigger finger, clonus, spasticity, ataxia- that can only be properly assessed for and diagnosed by a doctor and it's not clear this has been done. The place you need to start again with is a doctor and ask them for an assessment and move forward from there.

While you have been cleared of ALS by a neurologist who conducted an EMG, it's clear your health is very concerning to you. This forum is not a good place to start looking for answers to your questions though- as it focuses on supporting those with ALS and their caregivers.

Please take care and best of luck finding out what is going on.
 

lgelb

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I would see a rheumatologist to rule out rheumatoid arthritis and related disorders that 37 is by no means too young for. But I agree that ALS is not in this picture.

Best,
Laurie
 

DrinkWater37

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Thanks for the responses, ShiftKicker and Laurie. I have taken your advice and scheduled an appointment with a doctor.
 
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