rmt
Distinguished member
- Joined
- Sep 18, 2019
- Messages
- 376
- Reason
- Lost a loved one
- Diagnosis
- 07/2019
- Country
- US
- State
- WA
- City
- Seattle
@cmilviper, it sounds like your symptoms have all come up in the last 4 months or so. PLS and upper motor neuron dominant ALS tend to start in one area and progress slowly, so having symptoms in your torso, both legs and both arms this fast would be incredibly surprising. It would be an unbelievably rare presentation of an already very, very rare disease.
@TippiLeigh, correct me if I'm wrong, but you have had symptoms for about 2.5 years and it started in one limb and slowly over time spread to other areas. How long was it before you had symptoms in all your limbs and in your torso? That information might be helpful for cmilviper.
@cmilviper, I recommend that you go to your appointment and don't mention ALS or PLS or motor neuron disease at all. Describe your symptoms and timeline, get an exam and see what the doctor thinks it is and what the next steps might be. But don't ask if they think it is ALS or PLS. If they suspect either of those, they will tell you.
@TippiLeigh, correct me if I'm wrong, but you have had symptoms for about 2.5 years and it started in one limb and slowly over time spread to other areas. How long was it before you had symptoms in all your limbs and in your torso? That information might be helpful for cmilviper.
@cmilviper, I recommend that you go to your appointment and don't mention ALS or PLS or motor neuron disease at all. Describe your symptoms and timeline, get an exam and see what the doctor thinks it is and what the next steps might be. But don't ask if they think it is ALS or PLS. If they suspect either of those, they will tell you.