greenjeans
New member
- Joined
- Oct 3, 2007
- Messages
- 7
- Reason
- PALS
- Diagnosis
- 07/2005
- Country
- US
- State
- GA
- City
- Lawrenceville
greenjeans has reported a post.
Reason:
Forum: Do I Have ALS? Is This ALS?
Assigned Moderators: Al, CindyM
Posted by: jimercat
Original Content:
Reason:
Post: Question about ALS Clinichi---not sure how to do this--sorry if wrong
have been reading jimercat posts. i also go to Emory--refuse to go to clinic--what a circus.
went last week and they put me on lithium. so far so good. have they suggested it to you?
Forum: Do I Have ALS? Is This ALS?
Assigned Moderators: Al, CindyM
Posted by: jimercat
Original Content:
Jeff,
I can only give you information regarding my husband's experience at the Emory ALS Clinic in Atlanta.
When we were given the choice of going to Emory or staying with the neurologist that diagnosed my husband, we were told that all the specialists he would need to see would be at one location. Although he really wished he could continue with seeing his neurologist, he decided to go to Emory to save time, money and energy.
The Emory doctor was the fourth one seen by my husband regarding his illness. His GP diagnosed him with neurological "problem." Two neuros diagnosed him with ALS. And now the Emory doc. He examined my husband's reflexes and visually observed him after having extensively reviewed my husbands previous tests and records. He then gave us his diagnosed of ALS, agreeing with the other docs. After that all the specialists came in one at a time: neuromuscular research nurse for blood and trials participation info, speech language pathologist for swallowing and speech issues, occupational therapist for help with ADL, neuromuscular nurse clinician, social worker, rep from the MDA, and rep from the local ALS Assoc. The only thing missing were the hot dog and beer vendors! LOL Seriously, you will be there for a long while, so take some bottled water or something and a snack. Also bring reading material.
Jeff will you have anyone to take with you? If at all possible, take a close friend, you may need one.
I pray you are not diagnosed with this crap. Please let us know about you visit with the clinic.
Good Luck! Hopefully you will be able to change your screen name after the visit "lucksachangin!"