eec
New member
- Joined
- May 30, 2023
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- VA
- City
- Richmond
Hello,
On February 17,18 2023 I went to the ER twice with tingling that spread from my right arm to all my limbs. I was told to check if it was MS there on the first night. The tingling stayed with me for about a month in all limbs and tingling stayed on my right foot/ankle which comes and goes.
In late march/april my fingers seem to be losing strength. My right thumb can no longer squeeze things as it once could. It still usable but often when I use it with force it will twitch and I will feel pain. The left thumb is in a similar position but tends to have more spams and twitching when using force and less pain then the right thumb. When I type my arms begin to feel tired and I can feel pain in them.
In April my arms began to feel very heavy and noticed that everything I picked up felt heavier.
In April I began to feel lightheaded and started having tinnitus. That has been persistent since April to this day.
My legs feel weaker as well but I am not clinically weak in anyway so far. I can still walk and still pass the tests the Neurologist put you through. Sometimes when I walk I get a lot of pain in my knees, usually in the inner portion.
My Neurologist was sure everything would resolve itself but it has not. He ordered an MRI and the results were normal for my brain and neck. He has not reviewed it but I got the results myself. Initial blood test was clean.
He thinks the issues with my hands are carpel tunnel. A hand specialist told its either not carpel tunnel or very mild.
I am worried I have ALS specifically because the issue with my thumbs/hands. They are progressively worse day by day. Every doctor has said they want to wait on the EMG. Should I push for it? Should I be worried about ALS? I am truly losing it over this and not sure what to do.
On February 17,18 2023 I went to the ER twice with tingling that spread from my right arm to all my limbs. I was told to check if it was MS there on the first night. The tingling stayed with me for about a month in all limbs and tingling stayed on my right foot/ankle which comes and goes.
In late march/april my fingers seem to be losing strength. My right thumb can no longer squeeze things as it once could. It still usable but often when I use it with force it will twitch and I will feel pain. The left thumb is in a similar position but tends to have more spams and twitching when using force and less pain then the right thumb. When I type my arms begin to feel tired and I can feel pain in them.
In April my arms began to feel very heavy and noticed that everything I picked up felt heavier.
In April I began to feel lightheaded and started having tinnitus. That has been persistent since April to this day.
My legs feel weaker as well but I am not clinically weak in anyway so far. I can still walk and still pass the tests the Neurologist put you through. Sometimes when I walk I get a lot of pain in my knees, usually in the inner portion.
My Neurologist was sure everything would resolve itself but it has not. He ordered an MRI and the results were normal for my brain and neck. He has not reviewed it but I got the results myself. Initial blood test was clean.
He thinks the issues with my hands are carpel tunnel. A hand specialist told its either not carpel tunnel or very mild.
I am worried I have ALS specifically because the issue with my thumbs/hands. They are progressively worse day by day. Every doctor has said they want to wait on the EMG. Should I push for it? Should I be worried about ALS? I am truly losing it over this and not sure what to do.