Hi everyone. I am freaking out a bit right now as you can probably relate to.
12 years ago I was diagnosed with Cardiomyopathy and Congestive Heart Failure. I was 29 and seemingly healthy. I had a virus prior to the diagnosis but it's still idiopathic (unknown origin). The short version is that I am better, I have scar tissue but a normal heart aside from that. I went through all kinds of medications, cardiac ablation, etc. and have enjoyed good health for about nine years.
Quick fact: Muscle diseases run in my family. I had two uncles and a nephew who died of SMA (the most severe form of muscular dystrophy). I requested testing before having a child and was told I am not a carrier. As far as I know that is the only thing they tested me for.
Fast forward to now and why I am on an ALS forum. I am about to turn 42 and for the past year I have had these strange symptoms. My doctor is now wanting to test for ALS.
Here are my symptoms and what I hope you will give me feedback on:
pain/stiff left hip for over a year (my leg has almost buckled on me). This causes me to walk funny, especially when standing and just starting off walking.
fasciculations just started last week.
stiff and painful neck (ruled out anything cardiac related, do not have meningitis-did have bacterial meningitis a few years ago)....
Also, when I was little I had to have shots to build up my immunity.
They have ruled out everything else, no lesions or anything on my brain during MRI.
They were looking for disc issues or lesions, I found out after the fact.
So, does anyone have anything similar to what I described above above as symptoms? Does any of this sound familiar?
12 years ago I was diagnosed with Cardiomyopathy and Congestive Heart Failure. I was 29 and seemingly healthy. I had a virus prior to the diagnosis but it's still idiopathic (unknown origin). The short version is that I am better, I have scar tissue but a normal heart aside from that. I went through all kinds of medications, cardiac ablation, etc. and have enjoyed good health for about nine years.
Quick fact: Muscle diseases run in my family. I had two uncles and a nephew who died of SMA (the most severe form of muscular dystrophy). I requested testing before having a child and was told I am not a carrier. As far as I know that is the only thing they tested me for.
Fast forward to now and why I am on an ALS forum. I am about to turn 42 and for the past year I have had these strange symptoms. My doctor is now wanting to test for ALS.
Here are my symptoms and what I hope you will give me feedback on:
pain/stiff left hip for over a year (my leg has almost buckled on me). This causes me to walk funny, especially when standing and just starting off walking.
fasciculations just started last week.
stiff and painful neck (ruled out anything cardiac related, do not have meningitis-did have bacterial meningitis a few years ago)....
Also, when I was little I had to have shots to build up my immunity.
They have ruled out everything else, no lesions or anything on my brain during MRI.
They were looking for disc issues or lesions, I found out after the fact.
So, does anyone have anything similar to what I described above above as symptoms? Does any of this sound familiar?