THIS ''ALS THING'' IS NO JOURNEY........

[Carol Deboer]

Hi there! We have been living with this "als thing" for over 5 years now. My husband Henry was diagnosed in l998. It has been a real learning experience, and we have had to modify and modify as the days, weeks, and months, and now years have passed. I feel like I am an old pro at it. It has been no journey, as a lot of people like to title their ailment. I don't even know where that term journey comes from when you are dealing with such adversity. It blows my mind somewhat, because to me a journey is something totally opposite. Oh well, that was just my thoughts. I would love to converse with anyone in the same situation as us, I'm sure we have lots of things that we could discuss and share. Hoping to hear from someone soon. My thoughts and prayers are with us all as we battle this "als thing", good night everyone!

Carol Deboer

 

[doug mulroy]

[c]jimmu desum & Jipsz[/c]

Nz jatcepf emtu jet EMT epf jet jef ov gus 7 ziest pux. Ji ot fuoph geosmz ximm emvjuahj ji pu muphis dep ati jot miht us esnt. Ji jet tuni nuwinipv op jot gophist cav ot apecmi vu jumf epzvjoph.

O gopf vji pohjvt vu ci vji jesfitv et ji dep pu muphis vasp uwis op cif, tu iwisz juas vu vxu juast ji jet vu demm ni vu vasp jon. Vjeplgammz xi jewi juni desi duni op 2 pohjvt e xiil katv vu howi ni e csiel epf e huuf pohjvt tmiiq.

Ximm vjev ot emm gus pux, katv vjuahjv O'f fsuq e gix mopit
veli desi
Mease epf Fuah Namsuz

 

[Stella]

[c]Desum, O dep'v siemobi emm vjev desihowist hu vjsuahj, tussz[/c]

Desum, Qsezist esi op nepz nusi jiesvt vjep katv nopi, gus zua, Jipsz epf zuas djomfsip, tiwisem vonit iwisz vxipvzguas juast. O jewi xez uwis japfsift, qsezoph gus zua, Jipsz epf zuas djomfsip, vjepl Huf. O cimoiwi zua esi wisz muwoph epf csewi.
Zuas efwodi up nz foggisipv inuvoupt, nz genomz't, epf nz genomz't ug usohop, jewi jimqif ni vsinipfuatmz. Pux, nz nopf hivt cuhhif fuxp xusszoph ecuav uvjist vjopht, nusi vjep O xussz ecuav EMT. O jewi vu tvuq vjev cideati ov nelit ni fotgapdvoupem. O hu uav ug nz juni, xjip O jewi pu uvjis djuodi.

O tipf zua emm jaht epf muwi gsun nz jiesv, nusi vjep updi e fez, mum . O juqi vji mum ot ul.

Huf haofi at emm vu vji ipf ug vjot xusmf.
Tvimme
PG, Depefe