- May 7, 2003
Hi there! We have been living with this "als thing" for over 5 years now. My husband Henry was diagnosed in l998. It has been a real learning experience, and we have had to modify and modify as the days, weeks, and months, and now years have passed. I feel like I am an old pro at it. It has been no journey, as a lot of people like to title their ailment. I don't even know where that term journey comes from when you are dealing with such adversity. It blows my mind somewhat, because to me a journey is something totally opposite. Oh well, that was just my thoughts. I would love to converse with anyone in the same situation as us, I'm sure we have lots of things that we could discuss and share. Hoping to hear from someone soon. My thoughts and prayers are with us all as we battle this "als thing", good night everyone!