viv
New member
- Joined
- May 13, 2006
- Messages
- 2
- Reason
- Loved one DX
- Country
- CA
- State
- BC
- City
- Dawson Creek
My StepMom (Mom) has just returned from a consultation with a specialist who has confirmed her diagnosis of als.
I have been doing a lot of investigation into the disease, and am learning about the many different symptoms that we may encounter as it progresses, I agree that this really is a very nasty illness, and am honestly very, very scared about what we may soon have to face.
My Mom has apparently decided that she will not be a burden on her children. There are 8 kids, and unfortunately none of us live near her - the closest is 5 hours drive from her, and the furthest (myself) I'm 12 hours away. Mom has said now that she will not move to be closer to any of us, as she doesn't want to put us through the burden of looking after her.
We just lost our Dad a little over a year ago, and so Mom doesn't have anyone other than friends - many whom are members of her church, and although they are all wonderful to her - they can't provide her with the care she will one day need.
I am frustrated. We are all so very concerned about her, and the thought of none of us being nearby as this progresses is driving us crazy. She has just turned 65, and up until now, has always been completely capable of taking care of herself, and anyone else who needed caring. I realize that she has the right to choose where she will live...but I don't know what is available to help us make sure that she is well looked after. She lives in Vernon, BC....anyone who could give me any information on what is available in that area - or on care options that we can look into for future reference - it would be greatly appreciated.
I am really very grateful that there is an area like this for us to go to.
I have been doing a lot of investigation into the disease, and am learning about the many different symptoms that we may encounter as it progresses, I agree that this really is a very nasty illness, and am honestly very, very scared about what we may soon have to face.
My Mom has apparently decided that she will not be a burden on her children. There are 8 kids, and unfortunately none of us live near her - the closest is 5 hours drive from her, and the furthest (myself) I'm 12 hours away. Mom has said now that she will not move to be closer to any of us, as she doesn't want to put us through the burden of looking after her.
We just lost our Dad a little over a year ago, and so Mom doesn't have anyone other than friends - many whom are members of her church, and although they are all wonderful to her - they can't provide her with the care she will one day need.
I am frustrated. We are all so very concerned about her, and the thought of none of us being nearby as this progresses is driving us crazy. She has just turned 65, and up until now, has always been completely capable of taking care of herself, and anyone else who needed caring. I realize that she has the right to choose where she will live...but I don't know what is available to help us make sure that she is well looked after. She lives in Vernon, BC....anyone who could give me any information on what is available in that area - or on care options that we can look into for future reference - it would be greatly appreciated.
I am really very grateful that there is an area like this for us to go to.