Theme Song for ALS Patients

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MtPockets

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I found a song that really touched my heart, that was written by a young man who has a brother with ALS. I normally do not like modern music, but this song had so much heart felt love in the words that I put it on my Internet page.
Please go listen to it at http://www.myspace.com/als_bigal

Perhaps you know someone who needs to hear these words. YOU ARE MY HERO.

God Bless
Capt AL
 

Kerri

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Wow!

Wow, wow,wow. This song goes straight to the heart. It's packed with love and big
musical talent. This is a powerful, moving tribute- I hope many get to hear this. (Warning-listen to this music with a box of tissue handy!) Thank you Al for
sharing it!
 

Beebe

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Hi Big Al

Hi Al, Just wondered who is the singer-rapper. Had my Kids listen to the song. My Grandson isn't in to Rap , one song he likes, said half the time I don't know what they are saying! How True . Any info on this would be great and thanks for sharing. How's your Grandson? I think of you and him often. I should post more often, I read and am so tired by the end of the day it's too much to type and I don't have ALS. My Best to you. Beebe
 

Beebe

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Thank you. Have a good day. Beebe
 

MtPockets

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Sorry forgot to answer your question. My grandson is doing well. we have had to make several trips back to New Orleans to have the helmet adjusted. Seems like this is going to be an on going thing for the next year.

He is such a happy baby. I'm so thankful for him. He is such a blessing. He has gotten use to wearing the helmet. Looks like a little football player. He is about 5 months old now I guess. His head is shaping up nicely sine they removed the section of skull bone. The helmet is molding into into more of a round shape.

Here is one of the latest pictures showing how they decorated his helmet.

God Bless
Capt AL
 
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Icanmanz

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Such a cute little guy! May God bless him!

Irma
 

Beebe

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Big Al

Hi Al, Your grandson is so cute! Looks healthy. Glad things are going well, its amazing what wonders can be performed today. Have a good night. My Best to you, Beebe
 

MtPockets

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ALS Song for youth of today (RAP)

The link I put in below for the ALS theme song has changed. You can find it listed under myspace with the title "HERO w YOUNG FLETCHER, by SAINT FRANCIS"
I also have put it back on my home page on my space at: http://www.myspace.com/als_bigal
Sorry if anyone was confused by this change. It's a rap song about this singer, Saint Francis, who has a brother who has ALS.
It has a good message for the kids of today, if you can get them to listen to it.
 

olly

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capt al

great song capt al , can he get it recorded or send to a record label,it could raise funds for alsa/research, im sure alot of pals/cals and relatives would buy it.
all the best
caroline
 

MtPockets

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I'm in the process of asking him about that now. Waiting for his reply.
 

Icanmanz

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The link I put in below for the ALS theme song has changed. You can find it listed under myspace with the title "HERO w YOUNG FLETCHER, by SAINT FRANCIS"
I also have put it back on my home page on my space at: http://www.myspace.com/als_bigal
Sorry if anyone was confused by this change. It's a rap song about this singer, Saint Francis, who has a brother who has ALS.
It has a good message for the kids of today, if you can get them to listen to it.

Thank you so much, Al! Really nice. So well put together. I am going to share this with my son Shannon, Rudy's brother. Thank you, you are a great friend! I enjoyed your myspace site, too! Great family! Beautiful pictures. I am having problems posting. How can I leave the "quote messages" out? I click on reply, and the previous message appears instantaneously! So weird!

Irma
 

Al

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Hi Irma. In the bottom left hand corner there is an Options section. You may have inadvertantly clicked on the box Quote Message in reply. Try opening the quick reply box and see if the check mark is there.
AL.
 

Icanmanz

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Thank you Al, for your help, very much, and God bless!

Irma
 

MtPockets

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Theme Song For ALS Update

For those who were interested in the song on my webpage, it is now for sale as a download for $1.99, with $1.00 of each purchase going to the ALS Catfish Hunter Chapter of the ALS. Check them out at http://www.catfishchapter.org/

The song can be downloaded at: http://www.myspace.com/stfrancismusic
If you double click on the song HERO it will bring it up for you. The download is in the lower section of the page towards the bottom right. If you have trouble finding the page.

This is Rap music. While it is not the type of music I listen to, it will reach many young people and it gets out the message about ALS.
 
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