- Jul 22, 2008
- Learn about ALS
I am new. I have been sick since nov 2006. I'm ready to give up. They think it is psycosomatic or in my head. Here is what I have got so far. Started with sudden onset of weakness and uncontrolled movements. From 2006 to now I graduated to a walker. I'm 39 years old. Tests. Hyper-reflexive reflexes, ankle clonus, weak and horse voice, extreme upper and lower limb weakness, my wife opens my jars, difficulty speaking, easy short of breath, uncontrolled limb jerks, fasiculations, spasms, bad cramps including my diaphram area, hammer toes on left foot, Babinski on left foot, no abdominal reflexes on left abdomen, chronic constipation, ANA 1:40 speckeled also one 1:40 homogenious, CPK in the 300-500s, occasional low calcium, occasioal anemia slight, leukopenic with increase lukocytes and monocytes, CSF 3.2 myelin with a reference range of 0.0 to1.0, no ogolyconal bands, some kind of banding found in both serum and CSF, Negative brain MRI for lesions, same with spinal cord, blood brain barrier of 9. Slight comprimise. chronic pain in muscles. I can sometimes get a knee jerk from a upper limb reflex. I have been a nurse for some time and when a patient said I'm going to die it scared the crap out of me. This is how I feel I'm certain of it. Any and all help will be greatly appreciated. I refuse to let the VA kill me.