Midnight
Active member
- Joined
- Aug 23, 2007
- Messages
- 71
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- Other
- Country
- US
- State
- USA
- City
- Anytown
So..I had an appointment at UCLA yesterday. I was hoping that I would get some answers, but the only answers I have received were that I am the most healthy person in the entire world. My nerves are amazing, my emg (#2) is clear. The only things they can find wrong is my gait is completely screwed up, I cannot hold my head up for more than about 5 minutes, I have an abnormal reflex in my right foot, and (although they were not really concerned) I am losing the pad in my left hand (I am right handed, so I guess it doesn't matter). They did zero bloodwork, said they'd have to schedule me for a sing fiber EMG (it'll take a couple more months to get in for that) and so they sent me home. I waited four months for this?
I am just so sick of being sick and trying to put on the happy face for everyone. I just want to either feel better or KNOW WHAT IS WRONG WITH ME! It is so frustrating. So, I am going to just resign myself to the fact that I am going to be like this forever and I am at the point I NEVER want to see another doctor again. As far a MG goes, they said that because the doctors didn't find the positive Acetycholine In my blood in September, than I'd have to be the 5% that doesn't show it in my blood and the chances of that are slim. So I just pray that I don't end up with breating issues again and have to go get air. I am going to buy a stupid cane and just try to put 2007 behind me and forget about it. I am so sorry to have such a crappie attitude. I know I have a lot TO be grateful for, and in no way do I mean to disrespect anybody's health issues that validated health concerns...... but I am so frustrated right now I could scream. So I guess I will either get better or get worse and for now I am just going to continue to try to "be in" my life. I just hate it.
I am just so sick of being sick and trying to put on the happy face for everyone. I just want to either feel better or KNOW WHAT IS WRONG WITH ME! It is so frustrating. So, I am going to just resign myself to the fact that I am going to be like this forever and I am at the point I NEVER want to see another doctor again. As far a MG goes, they said that because the doctors didn't find the positive Acetycholine In my blood in September, than I'd have to be the 5% that doesn't show it in my blood and the chances of that are slim. So I just pray that I don't end up with breating issues again and have to go get air. I am going to buy a stupid cane and just try to put 2007 behind me and forget about it. I am so sorry to have such a crappie attitude. I know I have a lot TO be grateful for, and in no way do I mean to disrespect anybody's health issues that validated health concerns...... but I am so frustrated right now I could scream. So I guess I will either get better or get worse and for now I am just going to continue to try to "be in" my life. I just hate it.