Marjorie, Caroline, and everybody on this forum! I don't know why Kim started this thread, but I'll take it, I'll take it!
I agree with Caroline that every voice on our forum has the impact of truth and compassion behind it. I don't think I've ever read a post here that I didn't learn something from. We should celebrate every member of this forum ... including those who are no longer with us, as their messages and insights continue to inspire us all. And celebrate this forum, which Al continues to maintain as a safe haven for PALS and CALS, and lurkers who are just trying to understand this disease. (As opposed to the lurkers who hope to sell us stuff.)
As to my lack of venting, lord knows I've done enough of it here, especially about my husband's condition, and frustrations with what we laughingly call "The US Health Care Systen." (If this is a "system," I'd hate to see chaos!)
If it seems that I'm trying too hard to be upbeat, that's just the nature of this beast. I HOPE I've never stepped on anybody's toes when they're in a bad place; I really do try to be aware that there are times when it's appropriate to joke and times when it's not.
Unfortunately, this dog is too old to learn new tricks. (Opps ... I first wrote "turn new tricks" which is also true :roll
so I'm stuck with me as is. When I'm not crying or screaming and pounding the counter, I'm either laughing or asleep. I just wanted to give you a reminder of all the complaining I'm capable of.
Now, I'm even starting to bore myself, so enuf about me !
Opps ... forgot something important. We've hired a caregiver for two days a week. LOVELY woman full of warmth and humor and patience. She's worked with 8 ALS patients in the past, including 2 in hospice, and she's now researching Parkinson's so she can help my husband with exercises, etc. If/when funds and paperwork allow, we'll expand the hours and days. Also ... she likes cats. Must keep our priorities.