Angelgirl
New member
- Joined
- Nov 20, 2006
- Messages
- 7
- Reason
- Loved one DX
- Country
- US
- State
- MI
- City
- Watervliet
Hi friends,
I've been reading the forums for about the last 5 months. My mom was diagnosed with ALS in June. Her symptoms actually started about a year prior to her diagnosis. Her main challenge right now is inability to swallow or speak. She has a wonderful attitude and spirit and she is able to communicate by writing on a small dry erase board. Mom also had a feeding tube inserted in September and is doing awesome...feeding herself every 3 hrs. I know there has been some discussion on whether to have a feeding tube or not...and I say...go for it! She had lost a tremendous amount of weight and was always at the risk of choking. Now she is able to get the nourishment she needs.
The holidays are coming up and of course food is always a huge part of it. Mom is unable to eat anything at all and I feel extremely guilty eating a huge Thanksgiving or Christmas dinner in front of her. Has anyone else encountered this challenge? If so, how do you handle a delicate situation like this. I'd truly appreciate any input. I want to make this a memorable holiday season...but yet...I don't want to be insensitive.
Angelgirl
I've been reading the forums for about the last 5 months. My mom was diagnosed with ALS in June. Her symptoms actually started about a year prior to her diagnosis. Her main challenge right now is inability to swallow or speak. She has a wonderful attitude and spirit and she is able to communicate by writing on a small dry erase board. Mom also had a feeding tube inserted in September and is doing awesome...feeding herself every 3 hrs. I know there has been some discussion on whether to have a feeding tube or not...and I say...go for it! She had lost a tremendous amount of weight and was always at the risk of choking. Now she is able to get the nourishment she needs.
The holidays are coming up and of course food is always a huge part of it. Mom is unable to eat anything at all and I feel extremely guilty eating a huge Thanksgiving or Christmas dinner in front of her. Has anyone else encountered this challenge? If so, how do you handle a delicate situation like this. I'd truly appreciate any input. I want to make this a memorable holiday season...but yet...I don't want to be insensitive.
Angelgirl