The great twitching debate

[Alyoop]

How is your new baby?
A doctor would be crazy to doan EMG with widespread fasciculations and no other obvious abnormality, like atrophy or weakness, so it sounds like you have a good doctor.

 

[naynaydevil]

my baby is beautiful, thank u for asking! i don't know how to upload a pic on here, otherwise i would lol.

my anxiety about als sux, and its all becuase i put "twitching" into a search engine, and here i am! 4 months later, 4 neuro visits later, a million twitches later....etc etc....vicious cycle....i really hope its not als...but the dr doesnt think so so i just need to get my anxiety under control i guess and hope that its def anxiety//stress causing my physical symptoms.

sorry to take up you folk's time.....

 

[Alyoop]

I am so pleased that your baby is fine. I have been thinking of you. Yes anxiety sux, but you need to start to put it in perspective. You have been lucky enough to have got several opinions from neurologists, all of which were positive.

My husband told me a couple of months ago that he had had widespread fasciculations for a year before they abruptly ceased. It was a few years ago and he did not even bother to tell me. I would not have known what they were back then anyway. He is a neurologist and did not think anything of them at all, no tests no nothing. A specialist I saw in Sydney did an EMG on me and found fasciculations and said he had had them for years! So you see. It's very very rare for them to mean a thing.

I hope my little story has helped
Aly

 

[smallfish]

I am just trying to help the people who are scared, and maybe they won't listen to the ones who spread fear.

 

[naynaydevil]

actually aly, your story has helped me. that must be great to be married to a neuro. my neuro is excellent, knows what she is talking about and is espicially wonderful becuase she keeps having me come in just to reassure me lol. but at any rate, my anxiety has gotten the bst of me, and ive ended up here once again. Im going to upload a couple of pics of the baby right now in my album for all of u to see!

 

[mhswarriors]

By my count of the PALS responders to this thread the score is 14-5 in favor of those whose sympoms began with something OTHER than fascics. So why do you say "A majority"?

-Tom

To clarify even further my original post asked about widespread twitching. Even the few who noticed twitching first many had focal, and some just hadn't been to the neuro yet. I started this thread to help the new ones who are scared. I am 100% comfortable that bodywide twitching at the onset without any clinical or EMG findings simply is not ALS. Sadly it take many people a long time to believe that, but it is true.