- Feb 17, 2020
- Ann Arbor
It has been awhile (June) since I posted anything. Since then, her ALS score has dropped to 29 which seems lower than I would have expected. This is in part because in that time, we installed a 2x previously owned stair lift, received her power wheel chair, got a used wheelchair vehicle (a very cute Kia Soul), and have made most of the downstairs safe for the wheelchair. She can still eat, sleep, shower, toilet, dress and the like with minimal assistance. She isn't tied to the chair yet, but the distance she can walk with a rollator gets shorter and shorter. And no steps. Speech is still fine. Breathing is still unimpaired. I think the doc is scoring her conservatively, but that just may be denial on my part.