primeconcern
Member
- Joined
- Feb 6, 2013
- Messages
- 12
- Reason
- Learn about ALS
- Country
- US
- State
- Rhode Island
- City
- Johnston
DawneO,
I can relate to your frustration & pain as someone caring for a person with a horrible disease (I had 2 family members diagnosed with cancer a few yrs back, and also when my own mom contracted a terminal disease when I was just a teen) the gambit of emotions we went through were draining on all of us. I do not know anyone with ALS/MND, except for the few I’ve just met through here, so thank you for sharing some of your insight as a care-giver. I will be re-reading your post and others that have been just so helpful in collecting data for this assignment. Your description was spot-on, as it just took me through your 1st wks and up since hearing the news.
You mentioned how it is a struggle to remember to celebrate your friends living in the here and now and not be so depressed over the bleak outlook of the disease. I understand (oh too well that kind of fleeting hope). It must be horrible for you on another level, as a trained nurse already and just not feeling like there is MORE you can do. That really must be so frustrating, day in and day out as you visit your friend and go to work. Dawne, I wish you continued strength & faith as you do all you can for her loved one. Remind her, yourself and those around you of the precious time you have today.
May GOD bless you and yours and hold you all in his care.
PS: I’d like to extend to you a PM, if you have more time to talk. Thank you.
I can relate to your frustration & pain as someone caring for a person with a horrible disease (I had 2 family members diagnosed with cancer a few yrs back, and also when my own mom contracted a terminal disease when I was just a teen) the gambit of emotions we went through were draining on all of us. I do not know anyone with ALS/MND, except for the few I’ve just met through here, so thank you for sharing some of your insight as a care-giver. I will be re-reading your post and others that have been just so helpful in collecting data for this assignment. Your description was spot-on, as it just took me through your 1st wks and up since hearing the news.
You mentioned how it is a struggle to remember to celebrate your friends living in the here and now and not be so depressed over the bleak outlook of the disease. I understand (oh too well that kind of fleeting hope). It must be horrible for you on another level, as a trained nurse already and just not feeling like there is MORE you can do. That really must be so frustrating, day in and day out as you visit your friend and go to work. Dawne, I wish you continued strength & faith as you do all you can for her loved one. Remind her, yourself and those around you of the precious time you have today.
May GOD bless you and yours and hold you all in his care.
PS: I’d like to extend to you a PM, if you have more time to talk. Thank you.