Katie C
Very helpful member
- Joined
- Aug 1, 2009
- Messages
- 1,563
- Reason
- Lost a loved one
- Diagnosis
- 07/2009
- Country
- US
- State
- CA
- City
- San Jose
Primeconcern... you say you want to learn about the emotional impact of this disease, then turn around and lecture us about not giving you enough of our time to understand your somewhat lengthy posts. For some, the disease robs them of the ability to communicate easily or to spend long amounts of time concentrating on one thing. For caregivers, we are robbed of companionship at the same time that we are given added responsibilities... physical care of our PALS, total financial responsiblity for our families, to say nothing of the normal every days of cooking, housekeeping, etc. And if, as in our case, there is dementia involved, all of the above is intensified. So yes.. we distrust those who show up unknown wanting a piece of that time. While we offer each other support, your desire is to take away information. You don't want to read the whole site because it would take you too long. We come to this site with little bites of time... I'd rather spend it helping a PALS or CALS with specific suggestions or a simple "I know... hang in there" And perhaps if you really read the responses you got, you would actually get more insight into your query than you realized. Because anger, fear, frustration and yes... IMPATIENCE... are all part of the remarkable toll ALS takes on its victims and their families.