The diagnosis- it is ALS

[ladave]

Well, all the other tests were negative. I have ALS. My neurologist says it appears to be a non-aggressive form of the disease (it being three years or more since my symptoms began and I still have a lot of function). But it is ALS. As I thought. Sigh.

Surprisingly, I am feeling pretty okay today. I'm in a fighting mood, it seems. I'm at my office desk right now sorting out all sorts of messages that have piled up. Feels good- maybe I won't feel this way tomorrow but for some reason I do today. Maybe "knowing" IS better!

I decided to take Rilutek. The neurologist strongly recommended it (and no, Jerry, I didn't fire him) I'll also be starting physical therapy. I'll also be consulting an ALS expert, not so much for a "second opinion" as for guidance. I like my current neurologist though, he's a very nice man but still honest.

Well, it looks like y'all are gonna get used to havin' me around! I'm determined to join the "five-plus" club.

Dave

 

[braveheart]

Hi Dave,
WOW you must be a little stunned and relieved to finally know. I'm pullin' for ya. I am glad you are here.

 

[Granny]

Hi Dave,
I like your attitude! Sorry about the diagnosis, but it is better to know. Now you can fight this ALS thing.
Stay positive!
Leah

 

[John1]

Ladave, I'm sorry to hear of your diagnosis but you're heading into it with a good attitude. The fact that you went 3+ years prior to diagnosed and still have lots of function left is a very good sign. My experience personally and with others' posts over the past 5 years is that the longer the time you have with symptoms pre-diagnosis, the longer you will have after diagnosis.

 

[Al]

Sorry about the news Dave. Keep your sense of humor and don't give up.
Al.

 

[ladave]

Thanks, everyone. I'm sure I will be calling on you for support and strength in the days and years (hopefully many years) ahead. Now you researchers out there-hurry up and find that cure, darn it!

 

[upila]

Hi Dave,
You have the right attitude, and from the posts I/ve seen from you elsewhere - it is apparent you are poised for a fight!
That's the only way - and you will find it - we all have, somehow.
Best,

 

[marlo]

Hey Dave,
Like everyone else i am sorry to hear that your news wasn't better ,,but you do have the right frame of mind. Fighting it with a humorous attitude. Take it a day at a time.
Marlo