Hi Everyone,
It has been a while since I have been on, so I thought I would write a little update. My husband Bob was diagnosed with ALS on April 25th, 2007. He had Bulbar and lower limb onset. He has had two episodes that caused the left side of his face go numb and the corner of his mouth to droop alittle. No change in the numbness or droop and that all happened several weeks ago. He had another episode in his back that paralyzed him for about 5 minutes and then it went away as fast as it came. At the time I thought well what damage did that do. It was long, the next day, he began to complain that he didn't have enought air to finish his sentences. That was a few weeks ago and there is no change since then. He takes Lyrica for pain. He is in alot of pain in his right leg and some in his left. His hands go to sleep alot and one time he had alot of pain in his left hand. He drools alot especially at night. He has recently been having vertigo.
Dispite all of these things to look at him you wouldn't guess he has ALS. He does limp some.
I took a 30 day leave of absence from work and we have been traveling. Just seeing things and doing things we have always wanted to do. We took our grandchildren up to Sault Ste Marie to the Soo locks and to Whitefish Point to the Maritime Museum and Light House. It was alot of fun. We are seeing all the family, mine and his. We leave for New York in the morning. Not the City, upstate. He has alot of family there. We went to PA to see family he has never met and got alot of info from them reguarding the family history of ALS. Bob is number 8 that we know of. Once this trip is over we are going on a trip by our selves like we did the first week I was off work. We haven't decided were to go but where ever it is we will be together making memories to last a life time. If there is time later I will take another leave of absence so we can spend as much time together as possable as long as he is still getting around good.
I wish and hope that everyone could have the opportunity to make the time that we have last and memorable. We have been together for 26 years and have a lot of memories but these new memories are the ones we are able to create. We are very fortunate to be able to make these memories. There are so many people that don't get the chance. Well I guess I will go for now. Make the most of life and love to the fullest.
God Bless you all
Pat F
It has been a while since I have been on, so I thought I would write a little update. My husband Bob was diagnosed with ALS on April 25th, 2007. He had Bulbar and lower limb onset. He has had two episodes that caused the left side of his face go numb and the corner of his mouth to droop alittle. No change in the numbness or droop and that all happened several weeks ago. He had another episode in his back that paralyzed him for about 5 minutes and then it went away as fast as it came. At the time I thought well what damage did that do. It was long, the next day, he began to complain that he didn't have enought air to finish his sentences. That was a few weeks ago and there is no change since then. He takes Lyrica for pain. He is in alot of pain in his right leg and some in his left. His hands go to sleep alot and one time he had alot of pain in his left hand. He drools alot especially at night. He has recently been having vertigo.
Dispite all of these things to look at him you wouldn't guess he has ALS. He does limp some.
I took a 30 day leave of absence from work and we have been traveling. Just seeing things and doing things we have always wanted to do. We took our grandchildren up to Sault Ste Marie to the Soo locks and to Whitefish Point to the Maritime Museum and Light House. It was alot of fun. We are seeing all the family, mine and his. We leave for New York in the morning. Not the City, upstate. He has alot of family there. We went to PA to see family he has never met and got alot of info from them reguarding the family history of ALS. Bob is number 8 that we know of. Once this trip is over we are going on a trip by our selves like we did the first week I was off work. We haven't decided were to go but where ever it is we will be together making memories to last a life time. If there is time later I will take another leave of absence so we can spend as much time together as possable as long as he is still getting around good.
I wish and hope that everyone could have the opportunity to make the time that we have last and memorable. We have been together for 26 years and have a lot of memories but these new memories are the ones we are able to create. We are very fortunate to be able to make these memories. There are so many people that don't get the chance. Well I guess I will go for now. Make the most of life and love to the fullest.
God Bless you all
Pat F