max777
New member
- Joined
- Jan 14, 2014
- Messages
- 8
- Reason
- Learn about ALS
- Country
- CA
- State
- Quebec
- City
- MONTREAL
I wanted to post this question so people who are worried about ALS can find either comfort or closure. The question of "perceived weakness vs. clinical weakness" seems to arise very often, yet despite many admirable answers, many participants of this forum seem to be left unconvinced and/or unsatisfied. I'll admit - I am one of them. Whereas I profoundly appreciate both the time and patience that the members here generously dedicate to responding to queries, I still believe the answers regarding "clinical weakness" vs. "perceived weakness" have left the fundamental concern unaddressed. What seems to cause many people (including myself) concern, is that BEFORE clinical weakness, wouldn't one have perceived weakness? I ask this because if someone had clinical weakness, he or she would most likely not be posting on this forum worried about ALS. If someone could detail the pre-clinical weakness felt by someone who has ALS, it would better address the concerns of those who have perceived weakness. Realistically, the real fear/thought many people have in this forum is that there must be weakness felt before clinical weakness is present. If anyone can describe what that weakness is like, and generally (I know it always varies) how quickly it becomes clinical weakness, I think it would greatly help everyone's concern about (and understanding of) this subject.
Cheers!
Cheers!