Julie S
New member
- Joined
- Nov 7, 2007
- Messages
- 2
- Reason
- Loved one DX
- Country
- UK
- State
- West Midlands
- City
- Coventry
My father was diagnosed in May this year with MND. At the time I neither understood or could comprehend what this would mean for me and my family. My mother did a great job in protecting me not telling when he had falls, when things were getting difficult. I would always ask questions but my mum never really gave me an answer she would always find a way to deflect the conversation and kept me in the dark. I would visit and it would not be discussed. I had to pretend everything was normal when it wasn't.
For a while I felt completly alone, lost in the worry and the panic that was taking hold of me, anxiety attacks became frequent and I had difficulty concentrating. Yesterday I finally brokedown at work and had to leave. It may sound stupid but I felt a failure for not being able to work,that I couldn't deal with my emotions and carry on as normal, but it forced me to admit I needed help. I called my mum and we finally sat down and talked openly and honestly about the disease and I found out my father had ALS.
I found this website today , I have cried and shed a few tears reading the stories and the comments but I finally feel that I can face what is happening to me and my family and I am not alone. To know that there are people out there like you who can share thoughts, feelings and helpful tips has been a comfort to me.
My father at the moment struggles to walk (he has a walking frame) sits in a chair all day, cannot eat or drink unaided although his speach is ok at the moment. I noticed yesterday that his ankels were very swollen and I am panicking a little. My mother said it is because he is sitting in his chair for most of the day and it's due to lack of movement. Is this normal?
Thank you for listening
Julie
For a while I felt completly alone, lost in the worry and the panic that was taking hold of me, anxiety attacks became frequent and I had difficulty concentrating. Yesterday I finally brokedown at work and had to leave. It may sound stupid but I felt a failure for not being able to work,that I couldn't deal with my emotions and carry on as normal, but it forced me to admit I needed help. I called my mum and we finally sat down and talked openly and honestly about the disease and I found out my father had ALS.
I found this website today , I have cried and shed a few tears reading the stories and the comments but I finally feel that I can face what is happening to me and my family and I am not alone. To know that there are people out there like you who can share thoughts, feelings and helpful tips has been a comfort to me.
My father at the moment struggles to walk (he has a walking frame) sits in a chair all day, cannot eat or drink unaided although his speach is ok at the moment. I noticed yesterday that his ankels were very swollen and I am panicking a little. My mother said it is because he is sitting in his chair for most of the day and it's due to lack of movement. Is this normal?
Thank you for listening
Julie