shaunas mom
New member
- Joined
- Apr 2, 2014
- Messages
- 3
- Reason
- Loved one DX
- Diagnosis
- 10/2011
- Country
- US
- State
- Ohio
- City
- Marion
I am new to this forum. I have seen a lot of useful information shared by everyone that I appreciate greatly. My daughter was diagnosed with MS in March of 2011 and then ALS in October of 2011. they say she has both diseases.
She is a very strong person and fights this disease everyday, partly due to the fact she has a 13 year old and an 11 year year old. She fights everything about it. At first I think it was denial and now she still fights every step of the way by not wanting to take medications or use equipment that is necessary to her care til it becomes absolutely the last resort. She won't see the respiratory therapist to assess her breathing (maybe she doesn't want to know), or visit the ALS specialist for regular visits.
She finally got a PEG tube last summer after being dehydrated a lot and feeling bad all the time. Is anyone else experiencing anything like that from people you are caring for?
She is a very strong person and fights this disease everyday, partly due to the fact she has a 13 year old and an 11 year year old. She fights everything about it. At first I think it was denial and now she still fights every step of the way by not wanting to take medications or use equipment that is necessary to her care til it becomes absolutely the last resort. She won't see the respiratory therapist to assess her breathing (maybe she doesn't want to know), or visit the ALS specialist for regular visits.
She finally got a PEG tube last summer after being dehydrated a lot and feeling bad all the time. Is anyone else experiencing anything like that from people you are caring for?