rhlove24
New member
- Joined
- Jan 24, 2017
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- Florida
- City
- Parkland
First - I have read all of the important documents at the top of this forum. I am extremely appreciative to anyone who takes the time to read and respond and I wish everyone on here the very best.
I am going to outline my symptoms, testing, and stats simply to make this quick and easy for everyone hopefully.
37 year old female, Caucasian, 5 ft tall, 165 pounds
12/29/16 - Headache came and went without Tylenol, etc... Dizziness and double vision (binocular) left in it's wake
1/3/17 - Dizziness and double vision worse, also added nausea as an additional symptom
-Visited urgent care, they sent me to ER
1/3/17 - Admitted to hospital; blood work normal (thyroid was checked, kidney function, etc...); MRI & MRA & CT of head all normal; echocardiogram normal, carotid artery ultrasound normal, EKG normal
1/4/17 - Opthamologist came to me in hospital and ordered myasthenia gravis testing, found no evidence of anything significant, referred to neuro-opthamologist; Neurologist came, did exam and sent me home from hospital that night.
1/5/17 - Began having arms and legs go numb/tingling at night when laying in bed and sometimes when seated
1/9/17 - Saw neuro at office; exam ok; ordered many tests
Cervical spine MRI - normal; Orbits MRI - normal; all bloodwork almost normal - IMG 23 for Lyme was reactive (told this is not indicative of Lyme).
1/23/17 - NCV & EMG
NCV - Normal
EMG - Abnormal; right side 2+ & left side 3+
doctor said we need to look closely at results, could be as simple as pinched nerve (but said nah when he remembered that arms and legs are going numb, etc...) and could be as serious as MND. Told me not to jump to any conclusions.
I am still able to make all movements. Unsure of atrophy - possibly in right outer thigh; doctor will look again on Friday when I return to see them (neuro)
Addt'l symptoms - lots of numbness, tingling, more pronounced at night time; minimal twitching in limbs at night time; twitching in face random times. Not headaches, but like very brief headaches - 2-3 minutes dullness and then subsides. Weird sporadic pain in my back mostly on the lower right side - like a tight muscle, but sometimes on left side.
Thank you again for all of your help. Sorry in advance if I have wasted anyone's time.
I am going to outline my symptoms, testing, and stats simply to make this quick and easy for everyone hopefully.
37 year old female, Caucasian, 5 ft tall, 165 pounds
12/29/16 - Headache came and went without Tylenol, etc... Dizziness and double vision (binocular) left in it's wake
1/3/17 - Dizziness and double vision worse, also added nausea as an additional symptom
-Visited urgent care, they sent me to ER
1/3/17 - Admitted to hospital; blood work normal (thyroid was checked, kidney function, etc...); MRI & MRA & CT of head all normal; echocardiogram normal, carotid artery ultrasound normal, EKG normal
1/4/17 - Opthamologist came to me in hospital and ordered myasthenia gravis testing, found no evidence of anything significant, referred to neuro-opthamologist; Neurologist came, did exam and sent me home from hospital that night.
1/5/17 - Began having arms and legs go numb/tingling at night when laying in bed and sometimes when seated
1/9/17 - Saw neuro at office; exam ok; ordered many tests
Cervical spine MRI - normal; Orbits MRI - normal; all bloodwork almost normal - IMG 23 for Lyme was reactive (told this is not indicative of Lyme).
1/23/17 - NCV & EMG
NCV - Normal
EMG - Abnormal; right side 2+ & left side 3+
doctor said we need to look closely at results, could be as simple as pinched nerve (but said nah when he remembered that arms and legs are going numb, etc...) and could be as serious as MND. Told me not to jump to any conclusions.
I am still able to make all movements. Unsure of atrophy - possibly in right outer thigh; doctor will look again on Friday when I return to see them (neuro)
Addt'l symptoms - lots of numbness, tingling, more pronounced at night time; minimal twitching in limbs at night time; twitching in face random times. Not headaches, but like very brief headaches - 2-3 minutes dullness and then subsides. Weird sporadic pain in my back mostly on the lower right side - like a tight muscle, but sometimes on left side.
Thank you again for all of your help. Sorry in advance if I have wasted anyone's time.
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