DanielleS
New member
- Joined
- Jan 6, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Hello. I am a 44 year old woman. I was healthy until oct 2019, when I started to feel a weird un-wellness. A month later, my left foot began to feel odd pinky, and my pinky toe began to twitch. I also awoke to my middle finger on my right hand, completely numb. Over the past year and a half I have been experiencing many concerning symptoms. My twitches spread all over. My entire left side of my body feels "off". Some days I'm very off-balance, and walk like I'm drunk. Like I have no center of gravity. My jaw is tight and sometimes tingly. My joints all feel very loose, especially knees. When I step down on my right foot it feels like it sends quakes up my whole body. In the past month my voice is strained and I sometimes struggle to pronounce a word clearly. Now my knees seem to be loosing muscle (both sides getting very bony) and my forearms are losing bulk too.
I have seen 2 neurologists, with normal exams. One said its BFS & essential tremors. (Oh yeah... I have hand and neck tremors btw) I haven't had any follow up visits since my balance or voice issues. I have had MRIs that were unremarkable. I also had a 1:1280 ANA in dec 2019.
Can anyone reading this offer me any insight? I have gotten use to the twitches, although they still concern me. But its really all the other stuff scaring me to death. Also my tongue has started to look scalloped, whereas it never did before.
Thank you for your energy. ♡
I have seen 2 neurologists, with normal exams. One said its BFS & essential tremors. (Oh yeah... I have hand and neck tremors btw) I haven't had any follow up visits since my balance or voice issues. I have had MRIs that were unremarkable. I also had a 1:1280 ANA in dec 2019.
Can anyone reading this offer me any insight? I have gotten use to the twitches, although they still concern me. But its really all the other stuff scaring me to death. Also my tongue has started to look scalloped, whereas it never did before.
Thank you for your energy. ♡