jethro
Distinguished member
- Joined
- Nov 2, 2017
- Messages
- 457
- Reason
- PALS
- Diagnosis
- 09/2017
- Country
- HR
- State
- Croatia
- City
- ZAGREB
friend of mine, older 10 years, diagnosed is with neuralgic amiotrophy (complete different diagnose, even has it almost the same symptoms). doesn't know what to do with money, so just called her doctor and not knowing what she asks, she asked: "please how can i test for that disease...hm... als? money doesnt mater".
doctor wrote:
give blood sample, pay 1500 usd (app), we will send it for a testing. you'll get results in a 40 days.
we wil test:
“Amyotrophic lateral sclerosis (panel) by Next-generation sequencing (NGS) technology:
Investigated Genes: ALS2, ANG, CHMP2B, DCTN1, ERBB4, FIG4, FUS, MATR3, NEFH, OPTN, PFN1, PRPH, SETX, SIGMAR1, SOD1, SPG11, SQSTM1, TARDBP, TBK1, UBQLN2, VAPB,VCP
Sample: EDTA Blood”
does it work? she chosen expensive hospital.
she ask me to "look on google".
all i found (similar) was:
https://www.centogene.com/science/c...ng-for-amyotrophic-lateral-sclerosis-als.html
any guru wants to help?
doctor wrote:
give blood sample, pay 1500 usd (app), we will send it for a testing. you'll get results in a 40 days.
we wil test:
“Amyotrophic lateral sclerosis (panel) by Next-generation sequencing (NGS) technology:
Investigated Genes: ALS2, ANG, CHMP2B, DCTN1, ERBB4, FIG4, FUS, MATR3, NEFH, OPTN, PFN1, PRPH, SETX, SIGMAR1, SOD1, SPG11, SQSTM1, TARDBP, TBK1, UBQLN2, VAPB,VCP
Sample: EDTA Blood”
does it work? she chosen expensive hospital.
she ask me to "look on google".
all i found (similar) was:
https://www.centogene.com/science/c...ng-for-amyotrophic-lateral-sclerosis-als.html
any guru wants to help?