Marcy Darcy
New member
- Joined
- Jun 1, 2021
- Messages
- 4
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Toronto
I started with muscle twitching which is now all over body in April. Recently it's moved to my neck and I'm having tongue fasciculations.
I went to see a neurologist last week. I have hyperflexia in my knees, EMG and NCS normal. Because of the tongue and body fasciculations he's sending me for 2nd opinion to a neuromuscular specialist.
I am terrified as I'm a mom and want to be here for my kids.
Could this be als or bulbar als?
He did no testing on tongue except have me move it around and look gorgeous twitching. Could the body EMG have been done to early and would it show bulbar als?
Thank you
Not supposed to say gorgeous twitching, don't know how that got there.
I went to see a neurologist last week. I have hyperflexia in my knees, EMG and NCS normal. Because of the tongue and body fasciculations he's sending me for 2nd opinion to a neuromuscular specialist.
I am terrified as I'm a mom and want to be here for my kids.
Could this be als or bulbar als?
He did no testing on tongue except have me move it around and look gorgeous twitching. Could the body EMG have been done to early and would it show bulbar als?
Thank you
Not supposed to say gorgeous twitching, don't know how that got there.