Terrified it’s ALS

Sarah92

New member
Joined
Jul 11, 2021
Messages
7
Reason
Learn about ALS
Diagnosis
00/0000
Country
UK
City
Southend
I’ve had an mri of my head which was normal and a few blood tests to check for other things have come back normal. I understand I have to wait but I’m noticing changes daily to my strength and muscles. I know they say pain isn’t a symptom but I’ve heard from many that it can cause pain, I have lots of pain. I’m also losing a lot of weight, I’ll attach some photos of my hands, calves and thigh, which I perceive as muscle wasting which is happing very fast
 

Attachments

  • FB326ED1-61C5-4DC4-B57B-C8968184BD5A.jpeg
    FB326ED1-61C5-4DC4-B57B-C8968184BD5A.jpeg
    822.4 KB · Views: 55
  • 7591575A-B94D-408B-A5B1-76A2F4FA13AD.jpeg
    7591575A-B94D-408B-A5B1-76A2F4FA13AD.jpeg
    1 MB · Views: 55
  • 52B6FC4A-4D80-4801-9F5A-F2735CECA91B.jpeg
    52B6FC4A-4D80-4801-9F5A-F2735CECA91B.jpeg
    600.3 KB · Views: 52
  • CBD96E0A-C11E-4EC6-B0A5-6BC186E33C27.jpeg
    CBD96E0A-C11E-4EC6-B0A5-6BC186E33C27.jpeg
    597.3 KB · Views: 53
  • 1CBD0B42-4239-416E-A983-2B277B862508.jpeg
    1CBD0B42-4239-416E-A983-2B277B862508.jpeg
    537.9 KB · Views: 56

affected

Guru status reached
Joined
Apr 26, 2013
Messages
13,487
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
If you go back to the 'read before posting' sticky we make it clear that photos are not really helpful - you need to be examined and discuss these fears of atrophy with your doctor which happens after loss of strength. Just stop a moment - your muscles don't just waste away and then finally, oh you start to become weak. You become weak because your muscles are not receiving signals from your brain and as a result they begin to waste.
So sending us photos is returning to not being appropriate. You have an EMG very soon, if you are experiencing a lot of anxiety waiting for it, or fear you have changes happening, return to your doctor.
Please let us know the EMG results, but we truly can't do anything until then. You say you understand you have to wait, yet you are doing the actual opposite.
Not a single person responding to you here is a doctor, you need medical help, please seek it.
 
Top