healththro780
New member
- Joined
- Nov 23, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hi all, just want to preface this by saying I have an EMG scheduled but I just want some reassurance that this could possibly not be ALS, as I’m completely terrified. My doctor also noticed my left thumb was a bit weaker than it was during my last check (yesterday). Also some slightly NSFW content. I have cried almost every day the entire week from just fear, which i’ve never done in my life. All bloodwork is normal
About a month ago i *nsfw* did the deed by myself if you catch my drift while caffeinated. after i finished i noticed my whole body was weak, it was so sudden. just like super shaky after activities, esp my knee and arms. i went to my dr about it and he thought it was a combo of post covid and anxiety. it hasn’t improved
at this point i hadn’t connected the dots that caffeinated deed = pain/weakness, so i did it again about three weeks later (i had done it in between these two times without caffeine with no problem btw). after the second time it seems almost worse in some areas. for instance, both my ring fingers are weaker now and my middle finger on my left hand doesn’t extend all the way without a ton of force/trembling; and the same for my thumb on my right hand. my left hand also couldn’t really hold this one heavy thing upright very well but could fine on my right hand.
the most jarring symptom has been this lip trembling i get when i purse my lips a certain way and sometimes drink. didn’t notice this until after the second time. another one i didn’t notice that’s very nerve racking is that my left middle finger does not bend as far back as it would, it feels like a muscle in my wrist is stopping it, and if i do the my hand shakes a ton like my ring fingers are too weak for it, and they used to not do this. it also feels like my feet and hands fall asleep a lot faster
initially just chalked it up to being right handed but after noticing the finger things i am just convinced i have ALS. i’ve also had muscle twitches all over my body after i use a muscle
is there any way this isn’t ALS? i’d really appreciate some reassurance, i am terrified. i just hope this is all somehow long covid.
the few things that have eased my mind: no trouble swallowing or talking; it presented in my whole body instead of just like one body part, i can still move everything in my body (like i can do push-ups and everything), im only 23, and that’s about it lol. i understand y’all aren’t doctors and the only way to get tested is an EMG but any reassurance that this may not be ALS while i’m waiting on it would be much appreciated
some more things i forgot to note:
my neuro did a similar but less thorough strength test (he didn’t do the same thumb test as pcp) and said i was “as strong as a horse” and didn’t “see anything that would indicate a serious neurological issue”, just a tremor, but it also felt like he wanted me out of his office fast and i didn’t get to tell him all my weakness
my PCP also said he almost guarantees it’s not ALS but i still can’t get over the thumb weakness
About a month ago i *nsfw* did the deed by myself if you catch my drift while caffeinated. after i finished i noticed my whole body was weak, it was so sudden. just like super shaky after activities, esp my knee and arms. i went to my dr about it and he thought it was a combo of post covid and anxiety. it hasn’t improved
at this point i hadn’t connected the dots that caffeinated deed = pain/weakness, so i did it again about three weeks later (i had done it in between these two times without caffeine with no problem btw). after the second time it seems almost worse in some areas. for instance, both my ring fingers are weaker now and my middle finger on my left hand doesn’t extend all the way without a ton of force/trembling; and the same for my thumb on my right hand. my left hand also couldn’t really hold this one heavy thing upright very well but could fine on my right hand.
the most jarring symptom has been this lip trembling i get when i purse my lips a certain way and sometimes drink. didn’t notice this until after the second time. another one i didn’t notice that’s very nerve racking is that my left middle finger does not bend as far back as it would, it feels like a muscle in my wrist is stopping it, and if i do the my hand shakes a ton like my ring fingers are too weak for it, and they used to not do this. it also feels like my feet and hands fall asleep a lot faster
initially just chalked it up to being right handed but after noticing the finger things i am just convinced i have ALS. i’ve also had muscle twitches all over my body after i use a muscle
is there any way this isn’t ALS? i’d really appreciate some reassurance, i am terrified. i just hope this is all somehow long covid.
the few things that have eased my mind: no trouble swallowing or talking; it presented in my whole body instead of just like one body part, i can still move everything in my body (like i can do push-ups and everything), im only 23, and that’s about it lol. i understand y’all aren’t doctors and the only way to get tested is an EMG but any reassurance that this may not be ALS while i’m waiting on it would be much appreciated
some more things i forgot to note:
my neuro did a similar but less thorough strength test (he didn’t do the same thumb test as pcp) and said i was “as strong as a horse” and didn’t “see anything that would indicate a serious neurological issue”, just a tremor, but it also felt like he wanted me out of his office fast and i didn’t get to tell him all my weakness
my PCP also said he almost guarantees it’s not ALS but i still can’t get over the thumb weakness