Livinghope
New member
- Joined
- Oct 20, 2021
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MN
I had a bad EMG that was abnormal and neurologist said “suggestive of MND ALS.” I find it impossible to believe because I’ve been in severe excruciating pain for over two years. It all started with insane neck pain headache pain into the ER with triggerpoint injections.to alleviate. Ian level like 10+. Pain. Then I had weak arms ans eventually my shoulders and biceps got weak and semi paralyzed. This was over a year ago about 18 months, my EMG Then said all coming from neck and “Central Cord Syndrome” and incomplete spinal cord injury. Neurosurgeon found severe herniated disc and I had fusion surgery. Weakness continued and legs got weaker. Arms stayed same, maybe improved a little. Meanwhile having severe muscle pain and neck aches. This is what I’ve be diagnosed with neurologist says I have 2% chance ALS. I go to new neurologist and orders new EMG and very cold as a fish phone call tells me, “as I suspected suggestive of MND and ALS.” NO talk of treatment or testing or anything. I’m like what the hell.? Both new EMG abnormal But first one he told me it looked like coming from the spine. They’ve ordered new MRIs. I did upright MRI which only my neurosurgeon seems to be able to read so I need new one.
I’ve had small improvements,like my pinky wemt out and via exercise, I brought it back to be able,to type again. I canot walk well however or navigate stairs without help,atm. I’ve been diagnosed walking quadriplegic my neurosurgeon warned it could be permqmemt.
im terrified and devastated but I just don’t feel like I meet the ALS profile.please help me and give me some hope.
I’ve had small improvements,like my pinky wemt out and via exercise, I brought it back to be able,to type again. I canot walk well however or navigate stairs without help,atm. I’ve been diagnosed walking quadriplegic my neurosurgeon warned it could be permqmemt.
im terrified and devastated but I just don’t feel like I meet the ALS profile.please help me and give me some hope.