Ozgur
New member
- Joined
- Sep 8, 2010
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- 5
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- Learn about ALS
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- TR
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Hi all. I read many threads until decide to open this thread. Oh and sorry about my english.
First of all I went 4 neuros. All was said "you are not als". But i think they are not expert of MND so they were maybe misdiagnosed me.
My history was began 1 month ago with widespread fasciculations. They were all of my body but especially at my right leg. I've spent my time to motor neuron diseases from begining until now. My right hip has some pain and a "thing" which i couldnt explain. Actually my whole leg acting weird. My left leg is okay but I feel something develops at it (not anything noticable yet). I dont know i have a weakness because i can do everything after 1 month. But my walking is weird. I noticed some balance problems when walking. It was appear 1 week ago. My 4th neuro was write her report this: "legs has brisk reflexes". Absent babinski (by 2 different doctors), negative romberg (by me).
My other symptoms:
- increased saliva (no drooling, especially when i concentrate to my mouth)
- wrist pain when i use them too much (both of my leg)
- swallowing diffuculty (come and go)
- burning sensation (2 or 3 times at any location)
- frequent urination (last 1 week)
My brain MRI okay. Cervical MRI report: "cervical lordos is flatten" and some diffuse bulgings.. nothing at spinal cord. My EEG report: "cerebral bioactivity has mild disturbance". My blood work report: "B12 deficiency" it is 166.
I had an EMG about 2 days ago and my doctor said "it is completely normal". Here is my questions.
1. Is a clean EMG means; "fasciculations is not due to ALS or LMN" ?
2. She did not tested me from bulbar area. Is anything appears on EMG if i have bulbar onset? Therewithal she didnt pined to my hips. Is this EMG tottaly right?
2. In MND, Is increasing saliva means a real increasing or its because of swallowing problem? or both? I read many different comments.
3. Is this symptoms familiar for PLS?
Thanks for reading or not
First of all I went 4 neuros. All was said "you are not als". But i think they are not expert of MND so they were maybe misdiagnosed me.
My history was began 1 month ago with widespread fasciculations. They were all of my body but especially at my right leg. I've spent my time to motor neuron diseases from begining until now. My right hip has some pain and a "thing" which i couldnt explain. Actually my whole leg acting weird. My left leg is okay but I feel something develops at it (not anything noticable yet). I dont know i have a weakness because i can do everything after 1 month. But my walking is weird. I noticed some balance problems when walking. It was appear 1 week ago. My 4th neuro was write her report this: "legs has brisk reflexes". Absent babinski (by 2 different doctors), negative romberg (by me).
My other symptoms:
- increased saliva (no drooling, especially when i concentrate to my mouth)
- wrist pain when i use them too much (both of my leg)
- swallowing diffuculty (come and go)
- burning sensation (2 or 3 times at any location)
- frequent urination (last 1 week)
My brain MRI okay. Cervical MRI report: "cervical lordos is flatten" and some diffuse bulgings.. nothing at spinal cord. My EEG report: "cerebral bioactivity has mild disturbance". My blood work report: "B12 deficiency" it is 166.
I had an EMG about 2 days ago and my doctor said "it is completely normal". Here is my questions.
1. Is a clean EMG means; "fasciculations is not due to ALS or LMN" ?
2. She did not tested me from bulbar area. Is anything appears on EMG if i have bulbar onset? Therewithal she didnt pined to my hips. Is this EMG tottaly right?
2. In MND, Is increasing saliva means a real increasing or its because of swallowing problem? or both? I read many different comments.
3. Is this symptoms familiar for PLS?
Thanks for reading or not