JCK36
New member
- Joined
- Dec 18, 2024
- Messages
- 2
- Reason
- DX UMND/PLS
- Diagnosis
- 12/2024
- Country
- US
- State
- OR
- City
- Albany
Hi all,
I'm a 45 year old mom to two small kids. I am scared and need advice on how to slow this down.
Back in the early spring my left hand suddenly became weak, slow, and clumsy. Around the same time, my left foot started to drag occasionally when I walked. By the summer, I was having some fasciculations all over my body (mostly at night) and my upper left leg would stiffen up when I tried to run or walk fast. It was worse when I was stressed or cold. My left hand weakness stayed the same, but my left arm got a little weaker and jerkier, and my balance was off.
A recent exam showed hyperreflexia, positive hoffman, and positive babinksi signs. I believe it was on both sides, but definitely worse on the left. I also have clonus in the left ankle. But my EMG was normal, as was the MRI of my brain and cervical spine. Blood tests normal. They didn't think it was necessary to do a lumbar puncture.
So they said it looked like PLS. I know it could convert to ALS. I'm scared. I need to at least stay healthy until my kids are grown. Any advice on diet, exercise, medicine is welcome. I'm going to get a 2nd opinion.
Thank you,
JCK
I'm a 45 year old mom to two small kids. I am scared and need advice on how to slow this down.
Back in the early spring my left hand suddenly became weak, slow, and clumsy. Around the same time, my left foot started to drag occasionally when I walked. By the summer, I was having some fasciculations all over my body (mostly at night) and my upper left leg would stiffen up when I tried to run or walk fast. It was worse when I was stressed or cold. My left hand weakness stayed the same, but my left arm got a little weaker and jerkier, and my balance was off.
A recent exam showed hyperreflexia, positive hoffman, and positive babinksi signs. I believe it was on both sides, but definitely worse on the left. I also have clonus in the left ankle. But my EMG was normal, as was the MRI of my brain and cervical spine. Blood tests normal. They didn't think it was necessary to do a lumbar puncture.
So they said it looked like PLS. I know it could convert to ALS. I'm scared. I need to at least stay healthy until my kids are grown. Any advice on diet, exercise, medicine is welcome. I'm going to get a 2nd opinion.
Thank you,
JCK