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LIS

New member
Joined
May 24, 2007
Messages
2
Reason
PALS
Country
US
State
Ohio
City
Loveland
Hi, I'm Lisa.

I've reciently been dignosed with PLS or a slow progressive form of ALS.

I was wondering if there were any research projects for these conditions. I've tried to get into NIH, they had a study on PLS, but I was rejected due to my cervical discectomy and fusion. NIH wanted a "natural" progression of PLS. Could the surgery I had cause PLS?
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Lis-welcome to the forum but sorry for the reason you are here. You are asking some good questions-keep them coming! We've had a lot of speculation around here on what causes either PLS or ALS. Since nobody knows what causes it or how to cure it it's all one big question mark, I suppose. BTW, how are you feeling? Is the family coping OK? Cindy
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
Hi Lis, welcome to the forum. I hope you can find some answers to those questions.

God Bless
Capt AL
 

LIS

New member
Joined
May 24, 2007
Messages
2
Reason
PALS
Country
US
State
Ohio
City
Loveland
I have no problems when I am seated, I do drive still. I'm falling less because I move slower, and hang onto whatever will support me. Neuro Doc and hubby want me in a wheelchair, but chasing my wheeled walker is the only exercise I get these days. Hubby is NOT a patient, compassionate, or empathetic person, so I ask little of him. My biggest problem is mental. How can someone as active and healthy as me (a 3rd degree Black belt in Tae Kwon Do) contract something like this?
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi LIS. I believe we call it pure dumb bad luck. Or the wrath of God if that is your inclination or part of his master plan. There's a myriad of reasons but no one really knows why. The best advice we can give is try to stay positive and take it one day at a time.
AL.
 
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