Annie1959
Member
- Joined
- Feb 27, 2023
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MO
- City
- Nixa
I got a big surprise last week when I saw an ENT and after examination said he suspects I have ALS. I’ve had problems with choking and swallowing for about a year. Had negative brain and neck MRIs and negative endoscopy earlier ordered by a neurologist .
I’ve had a vocal cord disorder for many years so my voice already sounds strained and hoarse due to that. I don’t have any slurring going on
He examined me by scope in office and said I have tongue fasiculations and the laryngeal area doesn’t close completely. He also felt I had some right leg weakness I did notice last summer my legs felt very weak when taking walks in the heat. He’s referring me to a neuromuscular doctor.
I saw that he went so far as to put ALS as one of my diagnoses
Does giving me this diagnosis sound a little off seeing as I haven’t even had an EMG or seen a neuromuscular neurologist yet? Or is it possible that the symptoms I’m having combined with what he saw is enough to warrant it? I’m not sure what to think.
I’ve had a vocal cord disorder for many years so my voice already sounds strained and hoarse due to that. I don’t have any slurring going on
He examined me by scope in office and said I have tongue fasiculations and the laryngeal area doesn’t close completely. He also felt I had some right leg weakness I did notice last summer my legs felt very weak when taking walks in the heat. He’s referring me to a neuromuscular doctor.
I saw that he went so far as to put ALS as one of my diagnoses
Does giving me this diagnosis sound a little off seeing as I haven’t even had an EMG or seen a neuromuscular neurologist yet? Or is it possible that the symptoms I’m having combined with what he saw is enough to warrant it? I’m not sure what to think.