deleting post
Hi Cindy,I have done a lot of research on this condition,and continue to do so every day for as long as I can before my eyes start to blur.I have read up on a lot of issues,some were promising others were a complete let down,One thing I have come to a conclusion on is,that a lot of doctors , as helpful as they try to be,are not aware of the disease let alone anything out there that might be helpful..some actually know about anti-oxidants ,polyphenols,healthy food products etc. (if I can digest whats on the net,surely they can too )( do not forget I only retain what is positive and comes out of trials and test results from reliable institutes),but for some reason they are not able to or fearful of mentioning them to their patients.Not everything is" cut and dry" and some M.D.s may legitably be worried about giving "false hope",there are others who have directed their patients to some of the sites that refer to some benefits of certain natural products.When my daughter asked her neuro. about using anti-oxidants he had no objection at all,merely stating that they can not do any harm. Unfortunately in todays litigous world a lot of professionals are fearful of recommending certain things for fear of potential law suits.( especially if some of these things are out in "left field"and I am sure some machines fall into that category.I have noticed too that some posts on some of the M.N.D. FORUMS,lead me to believe that some patients are not initially seeing Neurologists(particularly ones with experience in the field of motor neuron degeneration)Geo"s comment may have been out of place as there are mant doctors out there that really are concerned and have just as hard a time dealing with this condition as their patients.Let us wait until Sunday and see if Geo. respondsto Als challenge..Manfred