msmissy
New member
- Joined
- Mar 10, 2008
- Messages
- 6
- Reason
- Loved one DX
- Country
- US
- State
- ia
- City
- jesup
Hello,
I've been talking care of my dad for the last 2 1/2 years and his disease has progressed significantly. He's been on the vent for the last year and has been unable to walk for the past 6 months. He's never really accepted his disease no matter how hard you try to help him or make him happy. Now its almost like he wants me to feel miserable along with him. He's on an antidepressant and anti anxiety medicines, but i there are times when he will smile away and other times he just lays there with no expression. Now he's starting to throw temper tantrums like a child. Since he can't talk, he rings a bell when he needs me. So he will ring the bell and want absolutely nothing. I try to spend time with him, but its just never enough. And when i tell him i'm busy he starts to play games, like he'll ring the bell and motion he wants suctioned when he clearly doesn't need it, or he wants pulled up in bed, or he wants wash cloths (which he puts in his mouth for secretions). I can only give into him so many times before i get angry and then once he sees me get upset he'll start getting himself so worked up that he turns bright red and starts kicking the side rails on his bed. I can't believe his behaviors. I'm only one person and i can only do and take so much. I've tried talking to him and telling him if he keeps it up he'll have to go to the nursing home and he makes it clear he doesn't want to go there but its like 30 minutes later he forgets our talk even existed. I'm to the point where i can't tell if enough is enough. I know his wishes are to be cared for at home, but his behaviors are dragging me down fast. Its to the point where i don't see this as rewarding anymore. Any one else dealing with childish behaviors? or any advice?!?!
I've been talking care of my dad for the last 2 1/2 years and his disease has progressed significantly. He's been on the vent for the last year and has been unable to walk for the past 6 months. He's never really accepted his disease no matter how hard you try to help him or make him happy. Now its almost like he wants me to feel miserable along with him. He's on an antidepressant and anti anxiety medicines, but i there are times when he will smile away and other times he just lays there with no expression. Now he's starting to throw temper tantrums like a child. Since he can't talk, he rings a bell when he needs me. So he will ring the bell and want absolutely nothing. I try to spend time with him, but its just never enough. And when i tell him i'm busy he starts to play games, like he'll ring the bell and motion he wants suctioned when he clearly doesn't need it, or he wants pulled up in bed, or he wants wash cloths (which he puts in his mouth for secretions). I can only give into him so many times before i get angry and then once he sees me get upset he'll start getting himself so worked up that he turns bright red and starts kicking the side rails on his bed. I can't believe his behaviors. I'm only one person and i can only do and take so much. I've tried talking to him and telling him if he keeps it up he'll have to go to the nursing home and he makes it clear he doesn't want to go there but its like 30 minutes later he forgets our talk even existed. I'm to the point where i can't tell if enough is enough. I know his wishes are to be cared for at home, but his behaviors are dragging me down fast. Its to the point where i don't see this as rewarding anymore. Any one else dealing with childish behaviors? or any advice?!?!
