I am sorry you are here, but stick with Nikki. She is right on and will help direct you or keep the crazies out.
I met some people from the Rocky Mountain Chapter who had a son-in-law with ALS who lived in Atlanta. Met them on a boat on Lake Powell. They were still volunteering with care services support groups 2+ years ago. Very nice folks.
Here is information for the Chapter and the Aurora support group.
“Please call us at (866) ALS-3211 or email
[email protected] if you have any questions or would like more information.”
Theare still virtual. Our group in the Phoenix area will start person to person again in September. Our group is/was a lot of fun believe it or not.
“
Aurora (2nd Saturday of the month)
11:00 am - 12:30 pm ~ Care Coordinator: Megan Frisk
Peace with Christ Lutheran Church
3290 S. Tower Rd.
Aurora, CO 80013”
You might want to visit the ALS Registry and look at clinical trials. The first has a good amount of info and we are trying to streamline it with only pertinent information. Clinicaltrials(.)Gov can be very cumbersome. You might want to look for then via the NEALS or I AM ALS websites which are customizable and MUCH easier to read. Also, ALS Untangled is good to see many alternative “treatments” and how they perform under regular trial research and testing.
I know that Jim above won’t remember me, but he had great input years ago as well as now.
For me, I had to get involved and have served in many capacities. Every time I think it is time to rest, then I get back to helping out. I have a slower progression of ALS, but we are all in this and it sure helps a lot if we are together.