Pythia
Member
- Joined
- Sep 12, 2007
- Messages
- 19
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- Ithaca
I am hoping the group can give me some advice on talking with my husband and family about ALS. I am not diagnosed but ALS runs in my family and my symptoms are getting more and more obvious. Soon I will have to start answering questions from my family.
On one side, I don’t want to worry them unnecessarily or appear to be soliciting sympathy but on the other, they will be furious with me for not telling them if I do get eventually get a diagnosis. I don’t know which is better.
I would love to hear from PALS and others awaiting diagnosis how you have handled this and how you think it could have been handled better.
On one side, I don’t want to worry them unnecessarily or appear to be soliciting sympathy but on the other, they will be furious with me for not telling them if I do get eventually get a diagnosis. I don’t know which is better.
I would love to hear from PALS and others awaiting diagnosis how you have handled this and how you think it could have been handled better.