Talked with Family

Signe

Member
Joined
Aug 17, 2017
Messages
20
Reason
PALS
Diagnosis
04/2019
Country
US
State
Iowa
I just told my 84 yr old father I have PBP with ALS, as I understand it. my dad has been very aware of my changing health but we had been told repeatedly by doctors that this wasn't ALS so the diagnosis was quite a shock.
I am very worried about my dad now, he has been so strong and gone through so much. My mother also had ALS and died 12 yrs ago. What if anything can I do to give my father comfort?
 

Vincent

Senior member
Joined
Dec 30, 2013
Messages
895
Reason
PALS
Diagnosis
08/2014
Country
CA
State
ON
You seem to be selling your father short. At 84 and having gone down this road before, I'm guessing he has an incredible inner strength and the coping skills to deal with this. If there is an elephant in the room, introduce the elephant. This is not a time for anything other than honesty. If you don't make things up, you won't have to remember who knows what. The wisdom of years and experiences could be a great comfort to you.
Vincent
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,255
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
PBP and ALS are two different things. So I would await diagnostic confirmation before getting deeper into this with him. But as Vincent says, you can only be honest and in all likelihood he has the resources to deal.
 
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

We appreciate your understanding and cooperation!

I've Disabled AdBlock
No Thanks