- Joined
- Aug 28, 2013
- Messages
- 2,869
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
Early (new) PALS or slow progression… don’t fall. Take all considerations
to prevent them.
Over three weeks ago I took a bad fall smack on my tail bone (coccyx and
sacrum). I’ve had the epidural shots. Little relief. One of the most miserable
hurts I’ve endured. Years ago I broke two ribs close to the spine… after a
week I was at least able to get comfortable with the right chair with pillows.
With this, there isn’t a comfortable chair in the house. The only relief is to
lay on my side in bed.
But, (Big But) I’ve lost a lot of the mobility I had previously. Getting on and
off the commode is more of a struggle, climbing stairs, walking with the
rollator and getting out of chairs… I can’t sit in very long.
This is my opinion…I’ve read where some posters have written they were
able to regain some mobility from some PT, meds, exercise and etc.
From all I have read here and related web sites, this is (again) my opinion
with ALS, “Once you lose it… it’s lost.” Maybe some of our very ALS knowledgeable
members can expand on regaining something lost is possible… I worry this
has accelerated my progression.
Take the possibility of falls seriously if you are an early PALS (as I call it)
or your progression is fortunately slow and you still have considerable
mobility.
to prevent them.
Over three weeks ago I took a bad fall smack on my tail bone (coccyx and
sacrum). I’ve had the epidural shots. Little relief. One of the most miserable
hurts I’ve endured. Years ago I broke two ribs close to the spine… after a
week I was at least able to get comfortable with the right chair with pillows.
With this, there isn’t a comfortable chair in the house. The only relief is to
lay on my side in bed.
But, (Big But) I’ve lost a lot of the mobility I had previously. Getting on and
off the commode is more of a struggle, climbing stairs, walking with the
rollator and getting out of chairs… I can’t sit in very long.
This is my opinion…I’ve read where some posters have written they were
able to regain some mobility from some PT, meds, exercise and etc.
From all I have read here and related web sites, this is (again) my opinion
with ALS, “Once you lose it… it’s lost.” Maybe some of our very ALS knowledgeable
members can expand on regaining something lost is possible… I worry this
has accelerated my progression.
Take the possibility of falls seriously if you are an early PALS (as I call it)
or your progression is fortunately slow and you still have considerable
mobility.