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Seehorse

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PALS
Country
IRE
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Dublin
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Dublin
HI there
I came across this site when I was typing in symptoms I have been having, so I am new to this. I am trying to figure out what is goign on with me. Basically for the last year and a half I feel like the area around my joints is disintegrating. It began in in my shoulders and the a year ago I began cracking noises from my neck to my toes. This has progressed to the point where now I crack my wrists knees hips ankles basically all joints on demand. They also do this involutarily 24/7 all day and all night. It is quite loud and quite dramatic. There is no pain involved except for discomfort when I press in on my arm hip or leg at certain points - even sleeping on my side has become a problem as well as on my back. I do feel sensations, tingling however and feel a major wasting - the evidence is there my body sounds old and decripid - I am 31. I have difficulty holding pots of tea for example for fear my wrist would break.. sitting is also a problem I feel like I have two big lumps in my buttocks that i need to move aside in order to sit comfortably...

I have been to a rheumatologist who basically just said it wasn't arthritis. On the occassions I have been to the GP/doctor he has prescribed me steroids, anti inflammatories and anti-depressants.. thinking these might work - Of course none have and now after much pressure I am in procees of seeing another rheumatologist, although I am not convinced this is the right path. I am now quite preoccupied and have not slept properly in a year and a half

It has got to the stage now where I am worried as I am thinkign it oculd be soemthing neurological.

I am 31, I had testicular cancer last year, it was caught early but I also had chemotherapy. While my problem had begun 5 months earlier with discomfort and wasting in shoulders it is about a month after the chemo that it took off over my whole body and has gotten progressively worse since. I now freak out anyone that is in close company.

Why I came across this site is because people mentioned about cracking joints all over. While I do have this and they are not secondary to anything else, like major weight or muscle loss, I am wondering do I have ALS/MND. Does anyone recognise what this might be.

I have read some posts and certainly trying to get satisfaction, answers or action from Doctors seems like such a struggle for people who surely could be putting their energies to better use at times like this.

Thanks in advance for any advice or guidance

Padraig
 

Al

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On
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Hello Padraig. Welcome to the site but sorry you are having trouble. Cracking joints is not a common symptom of ALS or MND as you call it over there. There are quite a few other MND's though but just as a guess not being a doctor I think you should be seeking the advice of an Orthopedic Specialist. Even with the muscle wasting in your shoulders the joint thing is probably bone related.
AL.
 

myooshka

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Country
CA
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alberta
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Sylvan Lake
cracklin joints

I am not diagnosed with als but am in the process of finding out why I have muscle wasting, twitching, weakness. One of the first things I noticed was my joints started to pop and click, when I stepped on my foot, moved my hand etc, but within weeks my calves were cramping, my muscles were tiring quickly and I was twitching. So if your not having these types of symptoms just keep an eye open for any new ones that concern you
 
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