Lennon
New member
- Joined
- Oct 8, 2019
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Los Angeles
I wanted to thank all of you who patiently answer desperate people in this forum, especially the ones who are affected. I'm 29 years old, and I've read the links that you recommend people to read before posting here. I also know the odds are small for someone of my age to get MND, but some young people prove odds are not to be trusted. I could be one.
In September 2018, I tried magic mushrooms without knowing their effect. I took some and I smoked marijuana after it and I had an intense bad trip. Days later, I noticed that experience extremely changed my attitude and I wasn't the person that I used to be. I was so positive, loving, caring, and extrovert. That experience basically changed my life.
-Around February 2019, I started to experience constant eyelid twitch on both eyes that went away around April. I knew nothing about MND.
-Around July, I was behind my desk at work, and all of a sudden, all I experienced weird vertigo along with dizziness. I thought it's probably nothing serious, and then a week later, I had a 24/7 vertigo along with fatigue. Before this, I was okay with 6 hours of sleep, but now I had to sleep at least for 8 hours to be able to concentrate and understand. I knew nothing about MND.
-In August, while I was eating dinner, I felt a strong sense of vertigo and went to ER. ER doctor said it's 99.9999% Benign Positional Vertigo. Drew blood, and everything returned normal. I knew nothing about MND.
-At this point, my body started sporadically twitch, spastic muscles were preventing me from sleeping, I was stiff, and the only way I could sleep was taking Ibuprofen.
-I saw my PCP in August, and he referred me for an MRI. MRI came back normal. He also referred me to see a neuro. I started to learn that there are types of diseases called MND, but I was sure it couldn't be me.
-I saw neuro in September, and he ordered blood work for vitamin B, rheumatoid factor, ANA screen, lead poisoning. Everything normal.
-The twitches started to hit my tongue, eyelids, throat, and rest of my face. Also, I cough and have to clear my throat when I want to talk. When I'm exhausted, I have to put effort into pronouncing words that have L or R, or P or B. I play guitar, and I also sing. My singing is not what it use to be, and when I sing bass, my voice shakes a lot, and it doesn't have the same strength as two months ago. Also, I carried a box of tissue from my car to our door, and my right bicep was shaking crazy 5 minutes after putting down the box.
-I saw another neuro, and he spent an hour and a half examining me. He checked my hand strength. Right hand 74 and left hand 69. All reflexes were normal. I failed the memory test, though. He checked my tongue and saw fasciculations, and he was concerned. He said it's most probably BFS, but he is concerned about my tongue twitch, and when I asked him about my voice problem and coughing, he seemed not to have an answer for it. My left shoulder, bicep, thigh, and calf is slightly smaller than the right. I measured it. He ordered EMG on the left side, and I'm waiting to get confirmation from my insurance to get an appointment.
At first, I thought YOPD and ALS were not a possibility, but when I asked the neuro(which was highly skilled in movement disorders) that is there any other possibility other than ALS or BFS, he said it's highly unlikely.
Two months ago, ALS was so far in my mind, but now it's a possibility, according to the neurologist. And honestly, deep down, I feel I have some motor neuron disease. Is there anyone who had similar symptoms with what I described? Can psychedelics cause MND?
I also forgot to add that all of these symptoms started after I started to work out in April after a long gap and I was working out intensely. I started working out for two months with plenty of protein consumption and then I stopped working out and 2 weeks after that all these symptoms showed up.
In September 2018, I tried magic mushrooms without knowing their effect. I took some and I smoked marijuana after it and I had an intense bad trip. Days later, I noticed that experience extremely changed my attitude and I wasn't the person that I used to be. I was so positive, loving, caring, and extrovert. That experience basically changed my life.
-Around February 2019, I started to experience constant eyelid twitch on both eyes that went away around April. I knew nothing about MND.
-Around July, I was behind my desk at work, and all of a sudden, all I experienced weird vertigo along with dizziness. I thought it's probably nothing serious, and then a week later, I had a 24/7 vertigo along with fatigue. Before this, I was okay with 6 hours of sleep, but now I had to sleep at least for 8 hours to be able to concentrate and understand. I knew nothing about MND.
-In August, while I was eating dinner, I felt a strong sense of vertigo and went to ER. ER doctor said it's 99.9999% Benign Positional Vertigo. Drew blood, and everything returned normal. I knew nothing about MND.
-At this point, my body started sporadically twitch, spastic muscles were preventing me from sleeping, I was stiff, and the only way I could sleep was taking Ibuprofen.
-I saw my PCP in August, and he referred me for an MRI. MRI came back normal. He also referred me to see a neuro. I started to learn that there are types of diseases called MND, but I was sure it couldn't be me.
-I saw neuro in September, and he ordered blood work for vitamin B, rheumatoid factor, ANA screen, lead poisoning. Everything normal.
-The twitches started to hit my tongue, eyelids, throat, and rest of my face. Also, I cough and have to clear my throat when I want to talk. When I'm exhausted, I have to put effort into pronouncing words that have L or R, or P or B. I play guitar, and I also sing. My singing is not what it use to be, and when I sing bass, my voice shakes a lot, and it doesn't have the same strength as two months ago. Also, I carried a box of tissue from my car to our door, and my right bicep was shaking crazy 5 minutes after putting down the box.
-I saw another neuro, and he spent an hour and a half examining me. He checked my hand strength. Right hand 74 and left hand 69. All reflexes were normal. I failed the memory test, though. He checked my tongue and saw fasciculations, and he was concerned. He said it's most probably BFS, but he is concerned about my tongue twitch, and when I asked him about my voice problem and coughing, he seemed not to have an answer for it. My left shoulder, bicep, thigh, and calf is slightly smaller than the right. I measured it. He ordered EMG on the left side, and I'm waiting to get confirmation from my insurance to get an appointment.
At first, I thought YOPD and ALS were not a possibility, but when I asked the neuro(which was highly skilled in movement disorders) that is there any other possibility other than ALS or BFS, he said it's highly unlikely.
Two months ago, ALS was so far in my mind, but now it's a possibility, according to the neurologist. And honestly, deep down, I feel I have some motor neuron disease. Is there anyone who had similar symptoms with what I described? Can psychedelics cause MND?
I also forgot to add that all of these symptoms started after I started to work out in April after a long gap and I was working out intensely. I started working out for two months with plenty of protein consumption and then I stopped working out and 2 weeks after that all these symptoms showed up.