bcc004004
Member
- Joined
- May 25, 2021
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- State College
Following up on a previously closed thread. I did not think I would be returning to post again, and yet here I am. 32 y.o. male experiencing a deteriorating existence.
I got off of adderrall in May of 2020 and since then have felt something is off with me. Finally, four months ago twitching began in my left calf and spread to everywhere in my body. Two weeks after twitching started I got a full body EMG which was negative.
Twitching continued and I did my best to ignore it since I had the EMG done. Unfortunately, a growing weakness has taken over my body. It has become harder to stand, walk, etc. My muscles feel stiff and weak suddenly. If I sit in one spot too long, it hurts like hell to get moving again. This is not normal for me at all.
Finally, last week, I was standing on my tip toes and noticed a new concave dent on my left calf, right where the twitching began. This was definitely not there before. Even others can notice it when I point it out. I can only assume that a particular muscle in that region has been completely denervated and as atrophied over the last three months. Calf raises are harder on my left foot. The rest of my body feels so extremely weak.
I am at this point leaning toward ALS again. I know I'm not an expert, but I don't know what else it could be. I had all the tests done. I've checked thyroid, autoimmune panels, brain MRI, full spinal MRI, ct of chest, ultrasound of stomach, carotid ultrasound, echocardiogram...I am experiencing constant body which twitching all day everyday, growing and persistent weakness, and what appears to be atrophy on my left calf.
My vision is somehow also changing. I see floaters, clear little blobs moving around.
I just don't know anymore. I am dreading the process of finding a new neuro and starting this whole process over. I guess another EMG is the next logical step.
Depression is setting in and a feeling of extreme hopelessness. Somehow deep down I know that it is ALS. I want to be wrong, but everything points to it.
If anyone has any words...please help me.
I got off of adderrall in May of 2020 and since then have felt something is off with me. Finally, four months ago twitching began in my left calf and spread to everywhere in my body. Two weeks after twitching started I got a full body EMG which was negative.
Twitching continued and I did my best to ignore it since I had the EMG done. Unfortunately, a growing weakness has taken over my body. It has become harder to stand, walk, etc. My muscles feel stiff and weak suddenly. If I sit in one spot too long, it hurts like hell to get moving again. This is not normal for me at all.
Finally, last week, I was standing on my tip toes and noticed a new concave dent on my left calf, right where the twitching began. This was definitely not there before. Even others can notice it when I point it out. I can only assume that a particular muscle in that region has been completely denervated and as atrophied over the last three months. Calf raises are harder on my left foot. The rest of my body feels so extremely weak.
I am at this point leaning toward ALS again. I know I'm not an expert, but I don't know what else it could be. I had all the tests done. I've checked thyroid, autoimmune panels, brain MRI, full spinal MRI, ct of chest, ultrasound of stomach, carotid ultrasound, echocardiogram...I am experiencing constant body which twitching all day everyday, growing and persistent weakness, and what appears to be atrophy on my left calf.
My vision is somehow also changing. I see floaters, clear little blobs moving around.
I just don't know anymore. I am dreading the process of finding a new neuro and starting this whole process over. I guess another EMG is the next logical step.
Depression is setting in and a feeling of extreme hopelessness. Somehow deep down I know that it is ALS. I want to be wrong, but everything points to it.
If anyone has any words...please help me.