acuteparabola94
New member
- Joined
- Aug 2, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- GA
Hello,
I am 28M and the last 2-3 months have been really scary. I am trying to get some opinions before I assume the worst. The first symptom that I had was a sharp tingling pins and needles sensation in the sole of my right foot after I did an intense workout session. I assumed that it was just burnout and did not hit the gym for the next one week but the tingling never went away and actually spread to the other foot as well. I went to my GP who took a whole lot of blood tests and here are the findings from them,
TriGlycerides - 1500 really high
Vit D- 5 Low
Uric acid levels - High
I got medications for all of this but the GP did not give me anything for the tingling in the legs by itself.
This was constant for about a month and a half until about 4 weeks back I hit the gym again and this time cycled very mildly. During the workout, the tingling sensation/numbness spread from my legs into my torso and I immediately stopped working out. When i came back home, the tingling was in my ears and my body was shaking in general. Just a note here the workout session I had was barely a warmup compared to what I have been doing for the last 3 months. In the next two days, I had constant shaking/tremors in my body and the feeling of a heavy chest all the time. I also developed the urge to urinate about 12 times a day and over the next few weeks, my balance was way off and I developed weakness in my entire right side to where my friends told me that I was leaning towards the right when I walk. I also found it really hard to swallow and cough up most things but this is sporadic and happens mostly in the mornings (breakfasts).
I did not have a neurologist that I see regularly so I went to a new Neuro and she did couple of physical tests and found that my reflexes were weak in my knees. She also predicted that this could be variation of GBS ( Guillane Barre Syndrome) and this explains the autonomic reactions of the body. She asked me to go to the ER if I could not swallow or find it difficult to breathe.
I freaked out and went to the ER the next day, where they took a brain MRI and a C and T spine MRIs a chest XRAY and a liver ultrasound with the following results
MRIs:
1. Mild degenerative changes of the cervical spine without significant spinal
canal narrowing, neural foramen narrowing, or abnormal cord signal. No abnormal
intrathecal enhancement.
2. Essentially normal MRI of the thoracic spine without and with contrast.
3. Mild diffuse T1 hypointense marrow signal is nonspecific, but favored to
represent marrow reconversion (such as from anemia, chronic hypoxia, or
obesity). While other diffuse infiltrative or metabolic processes can offer this
appearance, they are statistically less common and should only be considered in
the appropriate clinical setting (such as malignancy and renal osteodystrophy).
Chest Xray: Normal
Liver Ultrasound: Fatty Liver.
The neurologists that saw me in the ER and CDU mostly ruled out GBS or associated autoimmune neruo problems and they did not conduct a spinal tap on me for this reason. I was discharged and to follow up with a leading Neuro with the Emory network of brain health. The funny thing was when I was in the ER and CDU none of these symptoms were very noticable and all the physical exams that was conducted on me did not show loss of strength on either limbs or sides, my tingling in my feet was constant throughout and worse at nights as usual and my gait was off even in the hospital. After the discharge I had a good bout of 4 days when I had negligible symptoms but then about 5 days back, the tremors came back stronger and now I have random muscle cramps in the face and in the most random places on my body like my neck and my lower back. Also one strange thing that I notice is that when I try to drive, my right arm feels weak holding the steering and now I notice that even though my strong arm is the right, I have lost some dexterity and prefer to do things with my left hand instead. I also notice that the way I stand idle is with most of my weight on the left side all the time and that maintaining a straight standing posture is hard for more than 5 mins.
I am scheduled for a EMG in about a month ( the earliest that they could give me ) and now am freaking out about my symptoms. My hands and legs shake on both sides and I have tried to hold most things and my hand shakes for no reason. I also notice that I may be confusing a lot of symptoms or am not reporting them correctly because of the overwhelming amount of them that appear at these random times throughout the day.
I would like to know if any of these look like some initial ALS or MND symptoms of some kind. I am also realizing that I have not really had anxiety before this but now its off the charts and I am spending more time on Google trying to find out whats wrong with me because apparently 4 Neurologists and many NPs and my GP have no clue yet.
I am 28M and the last 2-3 months have been really scary. I am trying to get some opinions before I assume the worst. The first symptom that I had was a sharp tingling pins and needles sensation in the sole of my right foot after I did an intense workout session. I assumed that it was just burnout and did not hit the gym for the next one week but the tingling never went away and actually spread to the other foot as well. I went to my GP who took a whole lot of blood tests and here are the findings from them,
TriGlycerides - 1500 really high
Vit D- 5 Low
Uric acid levels - High
I got medications for all of this but the GP did not give me anything for the tingling in the legs by itself.
This was constant for about a month and a half until about 4 weeks back I hit the gym again and this time cycled very mildly. During the workout, the tingling sensation/numbness spread from my legs into my torso and I immediately stopped working out. When i came back home, the tingling was in my ears and my body was shaking in general. Just a note here the workout session I had was barely a warmup compared to what I have been doing for the last 3 months. In the next two days, I had constant shaking/tremors in my body and the feeling of a heavy chest all the time. I also developed the urge to urinate about 12 times a day and over the next few weeks, my balance was way off and I developed weakness in my entire right side to where my friends told me that I was leaning towards the right when I walk. I also found it really hard to swallow and cough up most things but this is sporadic and happens mostly in the mornings (breakfasts).
I did not have a neurologist that I see regularly so I went to a new Neuro and she did couple of physical tests and found that my reflexes were weak in my knees. She also predicted that this could be variation of GBS ( Guillane Barre Syndrome) and this explains the autonomic reactions of the body. She asked me to go to the ER if I could not swallow or find it difficult to breathe.
I freaked out and went to the ER the next day, where they took a brain MRI and a C and T spine MRIs a chest XRAY and a liver ultrasound with the following results
MRIs:
1. Mild degenerative changes of the cervical spine without significant spinal
canal narrowing, neural foramen narrowing, or abnormal cord signal. No abnormal
intrathecal enhancement.
2. Essentially normal MRI of the thoracic spine without and with contrast.
3. Mild diffuse T1 hypointense marrow signal is nonspecific, but favored to
represent marrow reconversion (such as from anemia, chronic hypoxia, or
obesity). While other diffuse infiltrative or metabolic processes can offer this
appearance, they are statistically less common and should only be considered in
the appropriate clinical setting (such as malignancy and renal osteodystrophy).
Chest Xray: Normal
Liver Ultrasound: Fatty Liver.
The neurologists that saw me in the ER and CDU mostly ruled out GBS or associated autoimmune neruo problems and they did not conduct a spinal tap on me for this reason. I was discharged and to follow up with a leading Neuro with the Emory network of brain health. The funny thing was when I was in the ER and CDU none of these symptoms were very noticable and all the physical exams that was conducted on me did not show loss of strength on either limbs or sides, my tingling in my feet was constant throughout and worse at nights as usual and my gait was off even in the hospital. After the discharge I had a good bout of 4 days when I had negligible symptoms but then about 5 days back, the tremors came back stronger and now I have random muscle cramps in the face and in the most random places on my body like my neck and my lower back. Also one strange thing that I notice is that when I try to drive, my right arm feels weak holding the steering and now I notice that even though my strong arm is the right, I have lost some dexterity and prefer to do things with my left hand instead. I also notice that the way I stand idle is with most of my weight on the left side all the time and that maintaining a straight standing posture is hard for more than 5 mins.
I am scheduled for a EMG in about a month ( the earliest that they could give me ) and now am freaking out about my symptoms. My hands and legs shake on both sides and I have tried to hold most things and my hand shakes for no reason. I also notice that I may be confusing a lot of symptoms or am not reporting them correctly because of the overwhelming amount of them that appear at these random times throughout the day.
I would like to know if any of these look like some initial ALS or MND symptoms of some kind. I am also realizing that I have not really had anxiety before this but now its off the charts and I am spending more time on Google trying to find out whats wrong with me because apparently 4 Neurologists and many NPs and my GP have no clue yet.