sabbyyanks
New member
- Joined
- Jul 19, 2024
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- IN
- City
- Decatur
Hi all,
Starting off just want to thank all of you for being here, and taking the time to read this post. I’m sure many of you know way more than I do, so please say whatever you think.
I woke up about a month ago and was just tired all that week. Started and felt like whole body, and my legs were tired and I could barely do anything. The next day was worst and i went to the er. Doc didn’t find anything, mono negative…told me follow up with my pcp. Scheduled an appt that next week, doc told me EBV. I then explained I knew nothing about EBV, but makes sense with the symptoms. She said she knows ALS is familial within my family (My maternal grandmother had it). She said it’s normal to feel scared, so she referred me to a nureologist to coach me on this.
After a few weeks i felt better-ISH. But im dealing with this left sided body weakness that will not go away. My arm is tired, my leg is tired. I have twitched everywhere (Shoulder, shoulder blade, legs, face, all of it!) I saw my nuero about three weeks ago, and we spoke about everything. He said ALS should not be a concern for me, but know it is. He said we will set up an EMG, but if my levels of EBV were high, it can take awhile for me to feel myself again. The easy answer would be to put ALS to rest, right? I wish.
Along with twitches, and weakness, i also may have muscle wasting in my left arm. My left arm has always been smaller than my right, in definition, as i’ve always tried to balance out that issue. I do have a winging scapula i’ve had for awhile and did PT but no help, i see someone for that the day i get my EMG. I do notice some weird lines down my arm especially when i raise something above my head and so on. Please note my vitamin D was also low. What scares me most is the weakness, and what looks like possible muscle wasting. I’ve never noticed those marks before. They show up when i lift something, rub lotions in my hands and so on. Twitches also scare me, but I vape, i’m stressed, anxious…so it could have something to do with that too, but i’m here to hear from people who know more than i do.
Again, know i am here as a guest and i do not mean to intrude or be any type of hypochondriac. I’m scared, so scared. I feel like i’m dying from ALS and it’s only a wasting game until i get the diagnosis, again my brain is telling me these things especially at night is when i feel worthless.
Thank you for all your questions and comments. You have no idea how thankful i am to be here.
Sabastian
Starting off just want to thank all of you for being here, and taking the time to read this post. I’m sure many of you know way more than I do, so please say whatever you think.
I woke up about a month ago and was just tired all that week. Started and felt like whole body, and my legs were tired and I could barely do anything. The next day was worst and i went to the er. Doc didn’t find anything, mono negative…told me follow up with my pcp. Scheduled an appt that next week, doc told me EBV. I then explained I knew nothing about EBV, but makes sense with the symptoms. She said she knows ALS is familial within my family (My maternal grandmother had it). She said it’s normal to feel scared, so she referred me to a nureologist to coach me on this.
After a few weeks i felt better-ISH. But im dealing with this left sided body weakness that will not go away. My arm is tired, my leg is tired. I have twitched everywhere (Shoulder, shoulder blade, legs, face, all of it!) I saw my nuero about three weeks ago, and we spoke about everything. He said ALS should not be a concern for me, but know it is. He said we will set up an EMG, but if my levels of EBV were high, it can take awhile for me to feel myself again. The easy answer would be to put ALS to rest, right? I wish.
Along with twitches, and weakness, i also may have muscle wasting in my left arm. My left arm has always been smaller than my right, in definition, as i’ve always tried to balance out that issue. I do have a winging scapula i’ve had for awhile and did PT but no help, i see someone for that the day i get my EMG. I do notice some weird lines down my arm especially when i raise something above my head and so on. Please note my vitamin D was also low. What scares me most is the weakness, and what looks like possible muscle wasting. I’ve never noticed those marks before. They show up when i lift something, rub lotions in my hands and so on. Twitches also scare me, but I vape, i’m stressed, anxious…so it could have something to do with that too, but i’m here to hear from people who know more than i do.
Again, know i am here as a guest and i do not mean to intrude or be any type of hypochondriac. I’m scared, so scared. I feel like i’m dying from ALS and it’s only a wasting game until i get the diagnosis, again my brain is telling me these things especially at night is when i feel worthless.
Thank you for all your questions and comments. You have no idea how thankful i am to be here.
Sabastian
