Status
Not open for further replies.

schandra

New member
Joined
Dec 13, 2010
Messages
7
Reason
Learn about ALS
Country
IND
State
maharashtra
City
akola
hi all,

I m 39 year old male with nice wife & 2 kids (11 & 6 yrs old). I m suffering from some sensory & some neurological symptoms from mid September 2010. I would give chronological history of my illness. Before all these started i was athelatic person having no history of past illness.
On 22nd may 2010 i found in an accident resulting in fracture of my left hand lower third humeral shaft due to heavy blow. On 25th May undergone a surgery to join it. I had a plaster for 10 days. On removal of plaster my left wrist drop was observed . Doctor in his report stated that it is a neuropraxia & will get ok in 45 days. It did not get ok within 45 days so on followup visit Doctor ordered me the EMG/NCV of left hand. Emg showed axonal injury to radial nerve & neuropraxia to median nerve so doctor told me to go for electrophysio therepy foe next 45 days. After 45 days on next follow up visit he again ordered the EMG of left hand which showed the improvement in neuropraxia of medial nerve but unchanged radial nerve. So my doctor advised me to go for radial nerve repair after 30 days but meantime i had visited a hand surgeon who advised me to go for tendon Transfer surgery for wrist drop.
So i decided to go for tendon transfer surgery & schudeled on 29th August. 15 days after 2nd surgery i started feeling twitching on my left hand thumb & biceps. due to this i got worried & started to google it. While googling it i came across the term MND so i get more worried. On 24 September heavy cast of 2nd surgery removed. after removing that cast the twitches which were on the left arm only get spread to whole body & i found my left shoulder somewhat stiff.
Again i experienced widespread freezing & burning sensations, right eye pain, reduction in size of hip & pennis all of sudden, noise in stomach. due to all these symptoms i get scared & visited neuro on 4th october. he performed physical exam & told me not to worry @ MND.
But still then my sympotms are progressing & some new sympotms are get added like
widespread pins & needles sensation, ant moving sensation, body ache (on & off) from toe to neck,so i visited the same neuro on 14th nov. He performed EMG/ NCV on all limbs & after that reassured me not to worry @ MND. He also gave me some antidepressants on both visits.
I m still on that medical but the symptoms are not come down these are still progressing. From last 1.5 months I now have experiencing some new symptoms along with old symptoms. These are
1 joint popping cracking on movements while writing too i m experiencing shoulder joint cracking
2 Frequent change in colour of my skin, i observed that my skin is becoming thin
3 i observed that there is a dent (atrophy?) on my left thigh above the knee
4 back pain, shoulder pain & neck pain biceps (both) pain in addition to other body parts pain
5 some sort of noise in neck, mouth & nose
6 left hand wrist & finger stiffness
7 both ear pain & extra flux coming out of it
8 Mucus coming out of nose while taking lunch/ dinner
9 some moderate coughing from last 3 weeks
10 some different sensation on tip of tongue
These are the sympotms which are making me crazy. But untill now though i feel bodywide weakness i dont feel the clinical weakness. i m so worried about all these symptoms so please explain me what it could be?
Thanks in advance for your kind cooperation.
 

schandra

New member
Joined
Dec 13, 2010
Messages
7
Reason
Learn about ALS
Country
IND
State
maharashtra
City
akola
symptom progression

hi everybody,
39 yr male fractured lt humeral shaft . end May surgery. wrist drop observed. Doc stated, neuropraxia, after 45 days ordered EMG showed axonal injury to radial & neuropraxia to median. after 45 days EMG again it showed improved median & unchanged radial. tendon transfer on 29 Aug. by mid sept started twitching left hand thumb & biceps. after removing cast On 24 Sept twitches spread to whole body & found left shoulder stiff.
then widespread freezing & burning, right eye pain, reduced hip & pennis ,stomach noise. visited neuro on 4th oct performed physical exam & told me not to worry
still experiencing widespread pins & needles, itchiness, widespread body ache (on & off), 14 nov performed EMG all limbs & assured dont worry. Last 1.5 months experiencing
joint cracking,dent (atrophy?) on left thigh, noise in neck, mouth & nose, left hand wrist & finger stiffness, ear pain & extra flux, Mucus while lunch, coughing
no clinical weakness yet. what it could be? Thanks.
 

schandra

New member
Joined
Dec 13, 2010
Messages
7
Reason
Learn about ALS
Country
IND
State
maharashtra
City
akola
Re: symptom progression

Again colour of skin changes frequently
even if my body is pressed against soft thing a dent appears on skin
twitch in left hand thumb is so powerful i can see it moving
 

pumpdoc

Distinguished member
Joined
Jun 19, 2010
Messages
129
Reason
PALS
Diagnosis
02/2010
Country
US
State
California
City
San Marcos
Re: symptom progression

It's not ALS, that'ss for sure.
 

joelc

Moderator emeritus
Joined
Jul 15, 2006
Messages
2,786
Reason
PALS
Diagnosis
09/2005
Country
CA
State
BC
City
Abbotsford
Re: symptom progression

I don't know what it might be but it is not ALS. All we can do is tell you it isn't ALS, we are not doctors so can't diagnose you. Sorry. Trust your doctor.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
First post was just moderated and approved. Sorry for the delay.

AL.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
It doesn't sound like ALS to me either.

AL.
 

schandra

New member
Joined
Dec 13, 2010
Messages
7
Reason
Learn about ALS
Country
IND
State
maharashtra
City
akola
Thanks everybody who read it & answer it. Thanks
 
Status
Not open for further replies.
Top